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Public Support Group 450 total results
Discussions (36)
Accidents with a jpouch. getting worse with age...
Hello everyone!!! I've had a pouch since 2000. many bowel obstructions. 2 surgeries to fix adhesions. Currently have mild to moderate pouchitis, which is my...
J-pouch support: Want to connect with others living with a J-pouch
Is there a possibility of starting a Jpouch group for Crohns/UC? Some of the things we eat, our treatments, our pouch storage, testing, etc, are...
J-pouch leakage at night only: What helps to control it?
I have had a jpouch since 1996, basically in remission since. I have had a couple hiccups - bartholyn cyst, recto-vaginal fistula but no hospitalizations...
on coloplast pouches
I received a text today from the nurse who did my home health care She was at a coloplast workshop and told me not to...
J-Pouch or Proctectomy
Good morning! I am currently weighing the decision between a J-Pouch and a Proctectomy. I was diagnosed with Ulcerative Colitis in my rectum only in...
Ibuprofen and a J-pouch
Has anyone been told not to take Ibuprofen with a J-Pouch? At my last Pouch scope, I was told to avoid ibuprofen completely and use...
J-pouch Removal?
Hi all, with a diagnosis of aggressive ulcerative colitis, I had a colectomy and an ileoanal anastomosis surgery (j-pouch) in 1983. Over the years I...
Has anyone had the pouch removed because of complications?
https://connect.mayoclinic.org/discussion/has-anyone-had-the-pouch-removed-because-of-complications/
I have gotten sick recently after being exposed to heavy metal at work and now my w pouch and small intestine hurt all the time...
Solving Leaking Pouch Problem
I use a Hollister 82711 pouch, a Coloplast Barrier Ring and Coloplast Barrier Skin Spray. I started to have problems with leakage at the bottom...
J-Pouch and adenomatous polyps
I've had a J-Pouch since 2004. Recently found out that the most recent polyps biopsied tested positive for adenomatous. My father passed away from FAP...
Frequent bathroom use with a pouch: What happens as I age?
I am age 64 with a pouch. I use the bathroom about 20 times a day. What will happen when I am too old to...
Ulcerative Colitis total Colectomy with Ileal J pouch
I had a total Colectomy with an Ileal anal J pouch back in 1990 and have dealt with it all these years. But now having...
Anyone had an anastomotic stricture at J pouch connection?
I have a J Pouch for 20 years I had to have a small section at the cuff removed and had the J Pouch reconnected....
Questions about managing a Stoma Pouch
During the past several months I've had an indwelling Foley catheter and leg bag....Apparently external stoma pouches have to be frequently drained, every 2-4 hours...
Any thoughts on using a system with Pouch liners?
I have ileostomy and use Convetec Natura, which I really like, no issues at all. I recently saw an add for a pouch liner, described...
Anyone had a J-pouch revision after it was out of place?
My J Pouch is laying horizontal which causes tie ups, which I have been having for years. My original surgeon never saw a problem on...
Has anyone using ostomy pouches experienced rashes and itching?
Has anyone using ostomy pouches experienced rashes and itching? If so, any suggestions? Allergy pill seems to help except for the redness.
Kock Pouch with pre-diabetes: Anyone tips on lowering A1c?
Hi Everone! I’ve had a Kock Pouch for 47 years and am now pre-diabetic. Anyone tips on lowering A1c? AI is giving conflicting answers on...
Have neuropathy: Trouble disconnecting BARD night bag
I have chemo-induced neuropathy & I am really struggling to pull the connector to my urostomy pouch off every morning. For me it's strength &...
Anyone had robotic Sugarbaker parastomal hernia repair Dr Cima?
Im due to have this surgery for for parastomal ( ileostomy) hernia , because of pouching issues but no obstruction or pain,and want to hear...
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