333 total results
Discussions (27)
J-pouch support: Want to connect with others living with a J-pouch
Is there a possibility of starting a Jpouch group for Crohns/UC? Some of the things we eat, our treatments, our pouch storage, testing, etc, are...
J-pouch leakage at night only: What helps to control it?
I have had a jpouch since 1996, basically in remission since. I have had a couple hiccups - bartholyn cyst, recto-vaginal fistula but no hospitalizations...
on coloplast pouches
I received a text today from the nurse who did my home health care She was at a coloplast workshop and told me not to...
J-pouch Removal?
Hi all, with a diagnosis of aggressive ulcerative colitis, I had a colectomy and an ileoanal anastomosis surgery (j-pouch) in 1983. Over the years I...
Ulcerative Colitis total Colectomy with Ileal J pouch
I had a total Colectomy with an Ileal anal J pouch back in 1990 and have dealt with it all these years. But now having...
Anyone had a revision on J Pouch after it was out of place?
My J Pouch is laying horizontal which causes tie ups, which I have been having for years. My original surgeon never saw a problem on...
J-Pouch and adenomatous polyps
I've had a J-Pouch since 2004. Recently found out that the most recent polyps biopsied tested positive for adenomatous. My father passed away from FAP...
Solving Leaking Pouch Problem
I use a Hollister 82711 pouch, a Coloplast Barrier Ring and Coloplast Barrier Skin Spray. I started to have problems with leakage at the bottom...
Questions about managing a Stoma Pouch
During the past several months I've had an indwelling Foley catheter and leg bag....Apparently external stoma pouches have to be frequently drained, every 2-4 hours...
Any thoughts on using a system with Pouch liners?
I have ileostomy and use Convetec Natura, which I really like, no issues at all. I recently saw an add for a pouch liner, described...
Kock Pouch with pre-diabetes: Anyone tips on lowering A1c?
Hi Everone! I’ve had a Kock Pouch for 47 years and am now pre-diabetic. Anyone tips on lowering A1c? AI is giving conflicting answers on...
Has anyone using ostomy pouches experienced rashes and itching?
Has anyone using ostomy pouches experienced rashes and itching? If so, any suggestions? Allergy pill seems to help except for the redness.
What is the best way to clean around an ileostomy stoma?
I have been using Origins Checks and Balances. It is intended to be a face wash. It is easy to rinse off and leaves the...
Has anyone taken Entyvio for pouchitis?
Have J-pouch and now with pouchitis. Finished chemo for lymphoma last summer. What is your experience with entyvio?
The base of stoma covered by wafer: Remedy?
I changed my pouch today. I think the wafer is covering the base of my stoma. Will this be a problem?
Leaky appliance after sex
Does anyone else have problems with it leaking/failing after sex? I empty right before and fold it up into Coloplast pouch during but usually within...
Urostomy equipment question
I use Hollister urostomy pouch 8414 and for overnight I use Bard Urinary Drainage Bag. My supplier Edgepark informs me that the Urostomy drain tube...
Ileostomy output
What is normal output from an ileostomy? I need to empty my pouch 6-8 times a day. In addition, I need to open an Ez-vent...
Swimming Melted the Brava ostomy protective seal
I went swimming in a chlorinated pool for the first time. The next day saw my protective seal was melted in my pouch. Has anyone...
Sleeping with Ostomy
I have had an Ostomy for 26 years.Recently I have had to get up 2-3 times at night to empty my pouch. Any suggestions on...
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