Support Groups

Osteoporosis & Bone Health Support Group

Public Support Group
7,284 total results
Discussions (215)
Bone care choices? (After 2nd atypical femur fracture)
I'm scheduled to start Evenity next Tuesday to come off Prolia. I'm so nervous! My issues started in my 30's (now 71) when I had...
Last active: Feb 8 6:16am
Struggling with making an osteoporosis treatment decision
I am just struggling to make a decision about my treatment. I had my first bone density test and found I have osteoporosis. I have...
Last active: Jun 4 11:43pm
High anxiety regarding Reclast or Prolia decison for OP meds
I am overwhelmed with making this decision. Currently on Evenity, 2 more injections left. Severe Osteporosis. Spine -4.7. I left my OP Dr's office last...
Last active: Sep 22 4:39pm
Hard Fall
Well, yesterday I had a very hard fall onto a brick patio. I stayed there for a bit waiting to be rescued. When no rescue...
Last active: Apr 19 10:22am
Bioidentical Hormones for Osteoporosis
I was looking at Bioidentical Hormone Therapy (BHRT) to help with osteoporosis. Has anyone tried this approach. I was on Actonel for 10 years and...
Last active: Mar 28, 2023
Medication???
Hello My dr ( an osteoporosis specialist)suggested Tymlos My cost $2,300 A month Not happening Then she told me to come on and get a...
Last active: Nov 16, 2023
PVCs from reclast infusion?
I soldiered through 10 months of Evenity with swelling and pain after each injection that lasted most of the time. I took a 5 month...
Last active: May 16 12:29pm
Anyone had surgery even with an osteoporosis diagnosis?
Has anyone had surgery even though they've had an osteoporosis diagnosis? If so, was surgery successful? I had to postpone neck surgery due to a...
Last active: May 8, 2023
Prolia scores
Im 65 and have taken fosamax for many years but am at the point where I need either Prolia or Evenity. Ive had some radiation...
Last active: Aug 27, 2023
Has anyone been prescribed Alendronate with a spine BMD of -3.0?
Hi, I’m a 62 year old female with Osteoporosis of the lumbar spine -3.0. I am very active and have had no fractures. My PCP...
Last active: Sep 8, 2023
Fracture while on Forteo
Has anyone had a fracture while taking Forteo? I am so disappointed that I had a foot fracture after 4 months on Forteo. I am...
Last active: Nov 6 9:26am
Low Bone Turnover
Hello. I have had osteoporosis since I was 35, I am now 56. I have taken a variety of medicines but have done well until...
Last active: May 22 9:28pm
Osteoporosis medicine during invisalign
I have been on Evenity for 11 months and my bone density has greatly improved. I have one more dose left. I started Invisalign a...
Last active: Mar 22 7:23am
Has anyone stopped Evinity before a yr ?
I have been on Evinity for 6 months. My Dr may be taking me off . Getting really bad side affects. They last for a...
Last active: Sep 14, 2023
Reclast Risk of Atrial Fibrillation with Mitral Valve Regurgitation
I'm 64 and in good health except for mild (1+) mitral and (1 or 1-2+) tricuspid valve regurgitation last checked two years ago . I...
Last active: Dec 3 4:23pm
Severe osteoporosis plus severe lumbar spinal stenosis
I have severe osteoporosis for which I am now taking Evenity. I also have severe lumbar spinal stenosis for which my NP prescribed lumbar epidual...
Last active: Mar 26, 2023
Treating Osteoporosis while also dealing with Lymphoma
Hello, I am in the process of deciding my next osteoporosis drug. I was on fosemax for five years which kept my dex scores stable...
Last active: Mar 2, 2022
Questions about my CTX and Osteocalcin test results
I just received my CTX and Osteocalcin test results. CTX is 75 Osteocalcin is 11 I tried to do a quick search regarding these results...
Last active: Sep 28 8:37pm
Tymlos and continuous high heat rate even after stopping
I think Tymlos messed my heart forever, I started about 14 months ago, it always increased my heart rate( 130’s to 160’s) right after but...
Last active: Nov 10, 2022
What kind of plans are possible if you are looking ahead for many year
I am reading that Evenity is for one year; forteo/Tymlos for 2 years; Reclast for 3 years; bisphosphonates for 5 years; and Prolia for ten...
Last active: Aug 3, 2023