Support Groups

Osteoporosis & Bone Health Support Group

Public Support Group
9,012 total results
Discussions (311)
Update after seeing Stanford Bone Clinic endocrinologist
Someone asked me for an update after I had seen an endocrinologist affiliated with the Stanford Bone Clinic. I had my appointment in late April...
Last active: Jun 3 10:20am
Taking Tymlos but Forteo recommended
Has anyone switched from Tymlos to Forteo and had fewer side effects? I went to a new endocrinologist today. She said that in her experience,...
Last active: Oct 23, 2024
Confused about my TBS score
Hello all-- I finally read my FULL results of my Dexa last November (doctor just said I had severe osteoporosis and scheduled reclast infusion) and...
Last active: Mar 10 8:40pm
CTX Testing Question
All, I asked my new doc about having a CTX done since I am entering the post-Evenity (and Tymlos) phase of my treatment plan. Since...
Last active: Jul 25, 2024
Which specialist is best-Rheumatologist, Endocrinology, or Physiology?
I am beginning this Osteoporosis journey. 2 yrs ago the Rheumatologist had some labwork done and a couple x-rays and said that Evenity would be...
Last active: Jun 20, 2023
For those with mild osteopenia but multiple fragility fractures
My dexascans show mild osteopenia ... -lumbar spine -2.1, total hip -2.0 and femoral neck at -2.2. I am 69 but seem to have lost...
Last active: Jun 23, 2024
Reclast infusion today
I just wanted to let people know about my recent Reclast infusion. I hydrated for a couple of days before the infusion with water and...
Last active: Apr 14 1:45pm
Supplements with Tymlos or Forteo
I tried for years to improve my bones naturally with diet and exercise. Then I broke 4 bones in 13 months. I tried the full...
Last active: Aug 19, 2024
High calcium score in 24 hr urine test. What's next for testing?
I have severe osteoporosis, with lumbar spine DEXA of -3.9, which is 10.7% worse than 2.5 yrs ago when it was -3.2. My endocrinologist ordered...
Last active: Jun 30, 2024
DEXA results after mostly partial Tymlos dosing
A few people have asked me to post my DEXA results since I did not do a full dose of Tymlos (except for a few...
Last active: Jun 6, 2024
Those with Vertebral Fractures - Please share your story and advice
I am 74 with severe osteoporosis, worse in my spine (T-score -4.1). I believe I recently developed a vertebral fracture and will see my PCP...
Last active: Oct 15, 2024
How long can a person hold the gains from an anabolic plus reclast?
So, I had a very shocking and discouraging comment from my endo about how long a person generally holds gains from drug therapy for OP,...
Last active: Apr 9 6:03am
Financial discussions/tips concerning expensive treatment
The last 2 days have seen some pertinent posts in regard to how and what to do to secure help for the expensive treatments/ the...
Last active: Feb 14, 2024
Tymlos at 70+ - Pros & Cons with severe osteoporosis
I am 70, and have severe osteoporosis, I have had several fractures over the years. Recently I developed a t8 mild compression fracture. All my...
Last active: Jun 26 9:19am
Supporting 50-yo mom
Hi - this is my first time posting one of these. My mom has intense back pain (supposedly from “flaking” spine bone, not herniated discs...
Last active: 23 hours ago
Has Anyone Resolved Secondary Hyperparathyroidism with Magnesium Suppl
I was diagnosed with osteoporosis at age 46, and my doctors initially thought it was due to longstanding low vitamin D, diet, and genetics. I...
Last active: Jun 17 2:18pm
Interpreting CTX and P1NP Tests
Am I the only one who is frustrated with the mainstream healthcare system not being experienced in offering bone marker tests for those diagnosed with...
Last active: Jun 26 7:03am
My doctor did not prescribe any other medication after Prolia
I am a 24 year old male. I have been taking prolia for 3.5 years due to osteoporosis. After 7 doses of prolia, my doctor...
Last active: Jun 9 10:42am
How can I improve bone density when it hurts to move?
I have severe arthritis and my joints are usually hurting. I have done limited exercise in the past 2 years and worried my osteopenia will...
Last active: Sep 18, 2023
Recent Reclast Experience
For those interested, I had my first Reclast infusion on Thursday at 3 pm. I was really anxious about the side effects. I did as...
Last active: Jun 13 10:07am