Neuropathy Support Group

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Comments (323)

I have allodynia that is caused by fibromyalgia that I have had for 30 years. When...

https://connect.mayoclinic.org/comment/1374596/

Discussion: Allodynia: Anyone else sensitive to touch?

Support Group: Neuropathy

Posted: Aug 19, 2025

My tests were all normal, except conduction study. I also have not been given a reason...

https://connect.mayoclinic.org/comment/802286/

Discussion: Frustrated and tired, every test came back normal

Support Group: Neuropathy

Posted: Jan 27, 2023

I have a syndrome called Fibromyalgia that cause muscle cramps pain as well as feelings of...

https://connect.mayoclinic.org/comment/859791/

Discussion: Statin discontinued due to neuropathy. What are some alternatives?

Support Group: Neuropathy

Posted: May 14, 2023

I'm 78yrs old now. I was finally diagnosed with small fiber neuropathy several yrs ago. It...

https://connect.mayoclinic.org/comment/708159/

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 14, 2022

@poppsy1, Oh how sad I am for you. My dermatologist said I had a flaky scalp...

https://connect.mayoclinic.org/comment/145205/

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Mar 11, 2021

I'm really struggling....my skin burns/prickles on my entire upper body and face whether I wear clothes...

https://connect.mayoclinic.org/comment/1105640/

Discussion: Allodynia: Anyone else sensitive to touch?

Support Group: Neuropathy

Posted: Jul 14, 2024

Hello @carlosaugusto, Welcome to Connect. I'm sorry to hear you have had to deal with the...

https://connect.mayoclinic.org/comment/1038553/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 22, 2024

For a long time I've had neuropathy in lower legs, from under knees through feet, only...

https://connect.mayoclinic.org/comment/702665/

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Apr 26, 2022

Hi gnocchi, I just discovered your post. My story is not unlike yours. I have burning...

https://connect.mayoclinic.org/comment/1505312/

Discussion: Co enzyme Q10

Support Group: Neuropathy

Posted: Feb 14 2:08am

@hotfooted, Hi - It sounds like you are doing a little better! I also have SFN...

https://connect.mayoclinic.org/comment/264306/

Discussion: Kneading massage for lower leg and foot neuropathy

Support Group: Neuropathy

Posted: Jun 1, 2019

I also have sFN with autonomic disfunction, waiting for some more tests to be done. I...

https://connect.mayoclinic.org/comment/837299/

Discussion: still working with small fiber neuropathy

Support Group: Neuropathy

Posted: Apr 4, 2023

@willows Hi. Thanks for the insight. The tinnitus started before the Amitriptyline but it could certainly...

https://connect.mayoclinic.org/comment/676640/

Discussion: Ear Tinnitus and Pain with Neuropathy

Support Group: Neuropathy

Posted: Jan 31, 2022

@shelly1228 I had lumbar decompression and fusion surgery l3-l5 in August 2024 and still experiencing nerve...

https://connect.mayoclinic.org/comment/1184113/

Discussion: Post lumbar spinal fusion with nerve pain in knee/leg

Support Group: Spine Health

Posted: Dec 4, 2024

Yes! It presents as mind numbing pain that grabs very suddenly at night, making me cry...

https://connect.mayoclinic.org/comment/952675/

Discussion: Meralgia Paresthetica

Support Group: Neuropathy

Posted: Oct 23, 2023

I am 83 years old and have had fibromyalgia and IBS for thirty years. About two...

https://connect.mayoclinic.org/comment/1378457/

Discussion: Allodynia: Anyone else sensitive to touch?

Support Group: Neuropathy

Posted: Aug 24, 2025

I have been diagnosed with peripheral neuropathy which I have had for approx 5 years. PN...

https://connect.mayoclinic.org/comment/217635/

Discussion: Neuropathy pain.

Support Group: Neuropathy

Posted: Feb 20, 2021

25 mgs. At bedtime. I started at 12.5, then went to 25. I stopped taking it...

https://connect.mayoclinic.org/comment/288445/

Discussion: Gabapentin side effects?

Support Group: Chronic Pain

Posted: Feb 12, 2020

I’ve had a a chronic cough for 3-4 years now and was diagnosed with LSN about...

https://connect.mayoclinic.org/comment/241180/

Discussion: Anyone have Laryngeal Sensory Neuropathy?

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 20, 2019

@jan64 I have neuropathy, depression (caused by chronic pain, etc.), spinal stenosis, arthritis, etc. and a...

https://connect.mayoclinic.org/comment/1138114/

Discussion: Depression and PN: Anyone have success with an antidepressant?

Support Group: Neuropathy

Posted: Sep 8, 2024

I’ve been turned down as well and felt even more discouraged and depressed. Our family has...

https://connect.mayoclinic.org/comment/1173308/

Discussion: Surgery and SFN

Support Group: Neuropathy

Posted: Nov 14, 2024

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