Neuropathy Support Group

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Comments (345)

I have posted on this thread previously, but this sounds timely. My symptoms and subsequent diagnosis...

https://connect.mayoclinic.org/comment/279888/

Discussion: I am curious to know other’s stories of post viral neuropathy.

Support Group: Neuropathy

Posted: Aug 17, 2020

I have the same problem since 2007 after uri and stress time. After that everything cures...

https://connect.mayoclinic.org/comment/931227/

Discussion: Anyone have Laryngeal Sensory Neuropathy?

Support Group: Ear, Nose & Throat (ENT)

Posted: Sep 17, 2023

@lorirenee1, what kind of salve did the compounding pharmacy make for you? I was going to...

https://connect.mayoclinic.org/comment/256435/

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Apr 30, 2019

To expand a bit, the neuropathy involves my feet and legs. It wakes me at night...

https://connect.mayoclinic.org/comment/243835/

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Nov 11, 2019

Interesting. I think I get this sometimes. I have Wartenbergs Migratory Sensory Neuropathy, so can get...

https://connect.mayoclinic.org/comment/723064/

Discussion: Anyone have Laryngeal Sensory Neuropathy?

Support Group: Ear, Nose & Throat (ENT)

Posted: Jul 2, 2022

Amitriptyline will help you to get into the REM sleep which is the deepest sleep so...

https://connect.mayoclinic.org/comment/1417112/

Discussion: Taking amitriptyline for neuropathy?

Support Group: Neuropathy

Posted: Oct 16, 2025

I have allodynia that is caused by fibromyalgia that I have had for 30 years. When...

https://connect.mayoclinic.org/comment/1374596/

Discussion: Allodynia: Anyone else sensitive to touch?

Support Group: Neuropathy

Posted: Aug 19, 2025

I feel your pain. Thanks be to God, I've had no broken bones but four fusions...

https://connect.mayoclinic.org/comment/157525/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 19, 2019

Yikes! That is a lot to deal with. I really hope it’s effective for you. My...

https://connect.mayoclinic.org/comment/1144179/

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 19, 2024

I have replied to your posting from 2/4/19, previously, but I think it is time to...

https://connect.mayoclinic.org/comment/243979/

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Oct 2, 2020

My tests were all normal, except conduction study. I also have not been given a reason...

https://connect.mayoclinic.org/comment/802286/

Discussion: Frustrated and tired, every test came back normal

Support Group: Neuropathy

Posted: Jan 27, 2023

Recently diagnosed with fibromyalgia, and read about the 3 medications approved for it. I've read terrible...

https://connect.mayoclinic.org/comment/880907/

Discussion: My lyrica journey

Support Group: Neuropathy

Posted: Jun 18, 2023

I'm 78yrs old now. I was finally diagnosed with small fiber neuropathy several yrs ago. It...

https://connect.mayoclinic.org/comment/708159/

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 14, 2022

I have a syndrome called Fibromyalgia that cause muscle cramps pain as well as feelings of...

https://connect.mayoclinic.org/comment/859791/

Discussion: Statin discontinued due to neuropathy. What are some alternatives?

Support Group: Neuropathy

Posted: May 14, 2023

@poppsy1, Oh how sad I am for you. My dermatologist said I had a flaky scalp...

https://connect.mayoclinic.org/comment/145205/

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Mar 11, 2021

I'm really struggling....my skin burns/prickles on my entire upper body and face whether I wear clothes...

https://connect.mayoclinic.org/comment/1105640/

Discussion: Allodynia: Anyone else sensitive to touch?

Support Group: Neuropathy

Posted: Jul 14, 2024

Hello @carlosaugusto, Welcome to Connect. I'm sorry to hear you have had to deal with the...

https://connect.mayoclinic.org/comment/1038553/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 22, 2024

For a long time I've had neuropathy in lower legs, from under knees through feet, only...

https://connect.mayoclinic.org/comment/702665/

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Apr 26, 2022

Let me preface by stating that it all started after pertussis and that my white blood...

https://connect.mayoclinic.org/comment/1546516/

Discussion: Anyone have Laryngeal Sensory Neuropathy?

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 9 12:28pm

@hotfooted, Hi - It sounds like you are doing a little better! I also have SFN...

https://connect.mayoclinic.org/comment/264306/

Discussion: Kneading massage for lower leg and foot neuropathy

Support Group: Neuropathy

Posted: Jun 1, 2019

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