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maria7521
@maria7521

Posts: 10
Joined: Jul 22, 2018

Allodynia

Posted by @maria7521, Sun, Jul 22 7:17pm

Has anyone hear of the term allodynia?

REPLY

Yes, sadly. My problem is it hurts my feet just to have the sheet touch them

Hi @indiana9,

Welcome to Connect. Allodynia can be a symptom of several different nerve conditions, or it can occur on its own. Someone who has allodynia feels pain from non-painful stimuli. For example, a person may feel pain from a light touch or when brushing their hair. https://www.healthline.com/health/allodynia

I'm tagging @mloren @3michele3 @keyoeste1 as they've shared their experiences about very similar symptoms; you can view the discussion here:
"Electric Shock" type pain in my scalp! https://connect.mayoclinic.org/discussion/electric-shock-type-pain-in-my-scalp/

How long have you had symptoms of Allodynia, @indiana9? Have you had to make lifestyle changes to cope with this condition?

@indiana9

Yes, sadly. My problem is it hurts my feet just to have the sheet touch them

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If you go on Amazon, they sell piping structures to lift the sheets off your feet and they create a nice sheet free area for your feet.

@kanaazpereira

Hi @indiana9,

Welcome to Connect. Allodynia can be a symptom of several different nerve conditions, or it can occur on its own. Someone who has allodynia feels pain from non-painful stimuli. For example, a person may feel pain from a light touch or when brushing their hair. https://www.healthline.com/health/allodynia

I'm tagging @mloren @3michele3 @keyoeste1 as they've shared their experiences about very similar symptoms; you can view the discussion here:
"Electric Shock" type pain in my scalp! https://connect.mayoclinic.org/discussion/electric-shock-type-pain-in-my-scalp/

How long have you had symptoms of Allodynia, @indiana9? Have you had to make lifestyle changes to cope with this condition?

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I've had it about 5 years. They haven't decided exactly what I have yet. Been seeing different drs for about 4 yrs, Had emg and they confirmed I also have small fibre peripheral neuropathy in hands and feet. They're still trying to figure out why. My brother has similar issues, only his are worse. He's been diagnosed with sjogren's and has ivig treatments every 3 weeks.. I see another rheumatologist at the end of August.

Have you ever tried a different type of gamma globulin? Most infusion centers only stock one brand unless it is on back order. Ask your doctor about trying a different brand.

@susanjc

Have you ever tried a different type of gamma globulin? Most infusion centers only stock one brand unless it is on back order. Ask your doctor about trying a different brand.

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they haven't tried the ivig on me yet, just my brother. right now i'm on nucynta (tapentadol), pregabalin and a compound cream that contains ketamine and lidocaine, among other things

@susanjc

Have you ever tried a different type of gamma globulin? Most infusion centers only stock one brand unless it is on back order. Ask your doctor about trying a different brand.

Jump to this post

Hello @susanjc, Welcome to Mayo Clinic Connect. Do you or a loved one suffer from symptoms of Allodyna?

@susanjc

Have you ever tried a different type of gamma globulin? Most infusion centers only stock one brand unless it is on back order. Ask your doctor about trying a different brand.

Jump to this post

I have chronic demylnatating neuropathy

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