Mayo Clinic Connect
Has anyone hear of the term allodynia?
Yes, sadly. My problem is it hurts my feet just to have the sheet touch them
Welcome to Connect. Allodynia can be a symptom of several different nerve conditions, or it can occur on its own. Someone who has allodynia feels pain from non-painful stimuli. For example, a person may feel pain from a light touch or when brushing their hair. https://www.healthline.com/health/allodynia
I'm tagging @mloren @3michele3 @keyoeste1 as they've shared their experiences about very similar symptoms; you can view the discussion here:
"Electric Shock" type pain in my scalp! https://connect.mayoclinic.org/discussion/electric-shock-type-pain-in-my-scalp/
How long have you had symptoms of Allodynia, @indiana9? Have you had to make lifestyle changes to cope with this condition?
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If you go on Amazon, they sell piping structures to lift the sheets off your feet and they create a nice sheet free area for your feet.
I've had it about 5 years. They haven't decided exactly what I have yet. Been seeing different drs for about 4 yrs, Had emg and they confirmed I also have small fibre peripheral neuropathy in hands and feet. They're still trying to figure out why. My brother has similar issues, only his are worse. He's been diagnosed with sjogren's and has ivig treatments every 3 weeks.. I see another rheumatologist at the end of August.
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Have you ever tried a different type of gamma globulin? Most infusion centers only stock one brand unless it is on back order. Ask your doctor about trying a different brand.
they haven't tried the ivig on me yet, just my brother. right now i'm on nucynta (tapentadol), pregabalin and a compound cream that contains ketamine and lidocaine, among other things
Hello @susanjc, Welcome to Mayo Clinic Connect. Do you or a loved one suffer from symptoms of Allodyna?
I have chronic demylnatating neuropathy
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