Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
112 total results
Discussion
Merkel cell carcinoma
Hello, I was diagnosed in 2019 with Myelofibrosis and had a stem cell transplant in November 2020. Lot's of activity surrounding that! Developed GVHD one...
Last active: Jun 3 3:35pm
Discussion
Merkel cancer update
I have stage 3 Merkel cell carcinoma under my left eye and facial surgery showed cells in a lymph node in the cheek. I have...
Last active: May 7, 2024
Discussion
Merkel Cell Carcinoma: Immunotherapy while on antirejection meds
I was diagnosed with MCC and had surgery and followed with 30 treatment of radiation on the right side of my head, cheek and neck.The...
Last active: Jun 6 11:05pm
Discussion
Merkel cell cancer treatments when the wound bust open
Is there anyone that has experienced a wound from Merkel cell that stretches, and bust open and bleeds . What is it that you use...
Support Group: Melanoma & Skin Cancer
Last active: Jan 19 1:31pm
Discussion
Merkel Cell Carcinoma: I'd like to hear from others
I am new here, and just last month my mom was diagnosed with Merkel Cell. She had a large tumor on her face. I am...
Support Group: Melanoma & Skin Cancer
Last active: Apr 26 9:11pm
Discussion
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...
Last active: Oct 2, 2023
Discussion
What’s the best care option for live alone senior during radiation?
Biopsy results for suspicious Merkel Cell carcinoma on nose expected next week. I’m 75, live alone and wondered if it’s best to invest in temporary...
Last active: May 29, 2024
Discussion
NIH clinical study looking for the gene causing carcinoid cancer
My nephew recently became the third family member to have a NET diagnosis - his a Merkel Cell carcinoma. My father's was carcinoid of the...
Last active: Aug 13, 2017