Neuroendocrine Tumors (NETs) Support Group

My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...

Hi, My mom has recently been diagnosed with NET Grade 1 and the doctor has suggested her Octreotide 30mg. She has taken a couple of...

My husband has taken the Octreotide injection now for about 2.5 years. This past summer he started breaking into a rash/hives on the face &...

Following completion of PRRT treatment, my wife has been receiving monthly octreotide (Sandostatin LAR) injections.She will be out - of -town when the next injection...

Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in...

Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...

Maybe my story helps somebody. I've had well differentiated Nets for a while now. A review early last year of a 2019 CT confirmed mesenteric...

I was diagnosed with metastatic neuroendocrine cancer in the liver 4cm x 3.1 cm in Sept. Grade 2, non-functioning, well differentiated KCI 6-8%. My MRI...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

20 months after NET found in small intestine and already spread to liver. I have had resection, monthly octreotide injections, and Lutathera. The cancer seemed...