Neuroendocrine Tumors (NETs) Support Group

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Comment

@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...

https://connect.mayoclinic.org/comment/794083/

Discussion: Carcinoid Syndrome: Can it spread to the head?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2023

Comment

Fingers crossed that you get answers soon, @gigi65. Wow, 2 cancers in different lungs 10+ and...

https://connect.mayoclinic.org/comment/777319/

Discussion: Husband diagnosed: high grade carcinoma with neuroendocrine features

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

Comment

I have been with Mayo in Rochester since Feb 2020. I have grade 3 NETs in...

https://connect.mayoclinic.org/comment/765344/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2022

Comment

Hello @amd12 I appreciate the added information. Like you, I was confused about my carcinoid tumors...

https://connect.mayoclinic.org/comment/657547/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2021

Comment

I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...

https://connect.mayoclinic.org/comment/1143500/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

Mine is on the lungs , several of them. I was coughing more than normal 8...

https://connect.mayoclinic.org/comment/1065169/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

Comment

@auntiemum, I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well. See a...

https://connect.mayoclinic.org/comment/1045834/

Discussion: Atypical carcinoid tumour of the lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2024

Comment

Yes to all, flushing also, extreme bouts Diarrhea with mucous. Itching of skin, all problems had...

https://connect.mayoclinic.org/comment/1022130/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Comment

Hello @mlbschuler, I moved your discussion and combined it with an existing discussion titled, "Neuroendocrine cells...

https://connect.mayoclinic.org/comment/1004013/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

Comment

@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....

https://connect.mayoclinic.org/comment/962492/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2023

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