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Neuroendocrine Tumors (NETs) Support Group

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2,235 total results
Discussion
How to get a second opinion for an international patient??
Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...
Last active: May 10, 2021
Discussion
Clay colored bowels & diarrhea side effects with Octreotide
Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in...
Last active: Jan 27 2:29pm
Discussion
Constipation after right hemicolectomy?
Hello everyone! I was diagnosed with NET after having my appendix removed in January. After additional scans and tests, the cancer metastasized to my liver....
Last active: Jun 7 8:49pm
Discussion
What causes differences in reading of CAT Scan and MRI imaging?
I had a Cat Scan 9/5 that first identified the cancer. Then I had an MRI 11/19/24 and then a Cat Scan 12/3/2024.I am wondering...
Last active: Dec 7, 2024
Discussion
Embolization
I would like to hear from anyone who has embolization of their liver for the purpose of stopping/slowing growth of a metastatic tumor there.
Last active: Jan 6, 2019
Discussion
PRRT for NETs: Questioning whether I should continue or not
I’m questioning if I should continue PRRT for NETs on my liver. I feel much worse after starting PRRT
Last active: Oct 22, 2023
Discussion
Small Intestine Resection
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
Last active: Apr 23 11:20am
Discussion
PNETs: What comes first? Surgery or try to shrink tumor with chemo?
Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...
Last active: Jan 25 6:30pm
Discussion
I recently had surgery to remove NET in small intestine
They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...
Last active: May 12 7:42am
Discussion
What do I need to know about NETS?
What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...
Last active: Sep 11, 2023