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Neuroendocrine Tumors (NETs) Support Group

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Complicated NET Surgery Needed
They believe they found the original NET in my lower ileum. The plan or removing that part of the small intestine, appendix, and part of...
Last active: 2 days ago
Discussion
Wondering if we are making the right choices in our NET fight.
I've been involved in the Mayo forum for a few years now, read a lot of great stories of improvement and life living with NET....
Last active: Dec 28, 2024
Discussion
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Last active: Jun 28, 2024
Discussion
Siewert type 2 Gastroesophageal adenocarcinoma
I was first diagnosed on July 11, 2024 with Siewert type 2 Gastroesophageal Adenocarcinoma. I had a pet scan in Sept of the same year...
Support Group: Esophageal Cancer
Last active: Dec 20, 2025
Discussion
Spreading NET
Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...
Last active: Aug 6, 2025
Discussion
Stopping Octreotide???
My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...
Last active: Nov 11, 2024
Discussion
How to get a second opinion for an international patient??
Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...
Last active: May 10, 2021
Discussion
Clay colored bowels & diarrhea side effects with Octreotide
Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in...
Last active: Jan 27, 2025
Discussion
Surgery on Small Intestine
Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...
Last active: Aug 15, 2025