Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
1,626 total results
Discussion
Treatment for Stage IV Ampullary Cancer
I have stage IV cancer of ampulla of Vater, mets to liver. It is rare because it is small cell. Have had my regimen of...
Support Group: Cancer
Last active: Dec 1, 2017
Discussion
How to get a second opinion for an international patient??
Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...
Last active: May 10, 2021
Discussion
Inflammatory Pseudo Tumor
Good Evening. I’ve been posting from time to time about my experience with diagnosing a liver lesion found in my right lobe. I’ve had all...
Support Group: Digestive Health
Last active: Jan 8, 2021
Discussion
Pancreatic Cancer
Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver
Last active: Aug 13 7:52am
Discussion
Embolization
I would like to hear from anyone who has embolization of their liver for the purpose of stopping/slowing growth of a metastatic tumor there.
Last active: Jan 6, 2019
Discussion
PRRT for NETs: Questioning whether I should continue or not
I’m questioning if I should continue PRRT for NETs on my liver. I feel much worse after starting PRRT
Last active: Oct 22, 2023
Discussion
Anyone have hair loss with lanreotide?
After 8 months on lanreotide I am getting the diet down and no longer losing weight, but my hair loss is beginning to be noticeable....
Last active: Nov 4 10:44am
Discussion
What do I need to know about NETS?
What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...
Last active: Sep 11, 2023
Discussion
Help: What is a cancer symptom or not? Who to see?
I was diagnosed with a neuroendocrine tumour on my small bowel in 2014. This was found as I went into crisis. In June 2014 my...
Last active: Jun 5, 2019
Discussion
Carcinoid cancer in intestine or NETs (Neuroendocrine Tumors)
2016 my husband lost his colon and part of his small intestine following an colonoscopy. He now has an ileostomy which makes treating the cancer...
Last active: Mar 16, 2019