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Neuroendocrine Tumors (NETs) Support Group

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Liver function (birirubin, globulin, glucose, iron) and Octreotide
Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...
Last active: Mar 25, 2025
Discussion
How does Alcohol use affect Liver NET?
How much is too much? How does it effect Liver NET?
Last active: Aug 28, 2025
Discussion
Straight to the liver: Anyone have NETs originating in strange areas?
I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...
Last active: May 3 7:04am
Discussion
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
Last active: May 9 10:04am
Discussion
Is MRI imaging on same machine for NETs + Liver metastases important?
I have been told by several drs and read that it is important to have your images taken on the same machine for the quarterly,...
Last active: May 20, 2025
Discussion
Does anyone have neuroendocrine small cell carcinoma of the liver?
Looking to connect my sister with anyone with this rare cancer, as far as we know it originated in the liver. It's stage 4 and...
Last active: Mar 31 9:33am
Discussion
Liver NETs: Anyone has extreme swelling in feet and ankles?
My husband has significant liver tumors. Almost 80% disease in liver. He is currently being treated in GA, but we live in south AL. He...
Last active: Apr 28 9:14am
Discussion
Lymph nodes removed during surgery removing tumors in the liver
I have received different information about removing lymph nodes when a surgery is done to remove tumors in the liver. I have an unknow origin...
Last active: Aug 30, 2025
Discussion
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver
Last active: May 8, 2025
Discussion
Grade 3, poorly differentiated duodenal NET metastasized to liver-
3 years ago, I had surgery to remove the duodenal NET diagnosed as grade 3 and poorly differentiated. After recovering from surgery, I had 6...
Last active: Jul 21, 2025