Neuroendocrine Tumors (NETs) Support Group

3 years ago, I had surgery to remove the duodenal NET diagnosed as grade 3 and poorly differentiated. After recovering from surgery, I had 6...

Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...

Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver

I have metastatic neuroendocrine tumors in the liver with no known origin diagnosed in Sept 2024 grade 2 KI-67 6-8% well differentiated non functioning. Been...

Hi, I am looking for information and advice. On May 25,2017 I was diagnosed with carcinoid liver cancer. However, Carcinoid had already attacked my heart...

I have been told by several drs and read that it is important to have your images taken on the same machine for the quarterly,...

Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...

We are looking for the best diet or food suggestions for after liver embolization. There is no nausea but still very weak. Monthly lanreotide shots...

Hello I am new to the site. My 74 y/o husband is diagnosed with stage 4 gastric carcinoid tumor transverse colon which was partially resected...

Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...