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Public Support Group 794 total results
Discussion
Anyone living long-term with DIPNECH on lungs?
https://connect.mayoclinic.org/discussion/carcinoid-dyptik-on-lungs-neuroendocrine-does-anyone-have/
I have written on this form before. I am 71 and was diagnosed with very slow growing neuroendocrine tumors on my lungs 8 years ago....
Discussion
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
I was diagnosed with DIPNECH a few days ago, following lung biopsies. I will be having a second PET scan, called Detectnet Dotatate on August...
Comment
I forgot to saying she got also lung infection, we thought because of the chemotherapy but...
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@nana120 So they didn’t remove your lung NET? Or had it already metastasized when first discovered?
Discussion
Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Have CT scans every 6 months to monitor both recurrent breast cancer and neuroendocrine lung cancer. CT showed 7 mm cyst that looks like side...
Discussion
Anyone have Prophylactic Cranial Irradiation (PCI) for SCLC NETs?
I have cancer f unknown primary. Tumour in neck lymph node with histology type Neuroendocrine with suspected primary SCLC based on pathology of neck tumour.Had...
Discussion
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Good morning. My prayers and blessings to all on this page of interest. This is a new journey for me. Underwent a lung biopsy due...
Discussion
NIH clinical study looking for the gene causing carcinoid cancer
My nephew recently became the third family member to have a NET diagnosis - his a Merkel Cell carcinoma. My father's was carcinoid of the...
Discussion
Already on oxygen - diagnosed with DIPNECH: What happens next?
Most of what I am reading about DIPNECH deals with people who have not progressed as far as I have. I've been on supplementary oxygen...
Discussion
What questions should I ask oncologist tumor types and chemo treatment
77 yrs old, no symptoms, diagnosis not clear. NET found in LL lung and lymph nodes in upper LL. Dotatate G scan no involvement in...
Discussion
First Lanreotide Injection: Any tips about diet and side effects?
Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec...
Discussion
My journey to here...
Hi, my name is Anita. I found out I had lung NETs in March this year. I was sent for a CT scan to check...
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