Neuroendocrine Tumors (NETs) Support Group

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Comment

Yes monthly Somatuline Depot until further notice. Quarterly MRI to track the 1.7cm NET in my...

https://connect.mayoclinic.org/comment/894429/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2023

Comment

The first MR after 3-months on Afinitor 10 mg daily showed stability to slightly improved liver...

https://connect.mayoclinic.org/comment/182422/

Discussion: PRRT has been approved by the FDA Jan 26, 2018, as expected

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2018

Comment

So glad to find this! Had NET surgery small intestine and mesentery in 2015 after diagnosis...

https://connect.mayoclinic.org/comment/827137/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Comment

Sorry, but I have another question, I had surgery (distal) in 2022 and liver lesion in...

https://connect.mayoclinic.org/comment/1312450/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 25 10:30am

Comment

I am a patient of Dr Starr's at Mayo Clinic Jacksonville. My NETS were ileum primary...

https://connect.mayoclinic.org/comment/876912/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

He had two tumors on his pancreas so they removed his pancreas in 2018. It has...

https://connect.mayoclinic.org/comment/292375/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2020

Comment

Thank you Lindabees! Our emotions are all over the place right now. I hope there is...

https://connect.mayoclinic.org/comment/1206203/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 3:26pm

Comment

My hematologist is the one who diagnosed my PNET due to extremely low platelet count. She...

https://connect.mayoclinic.org/comment/1049783/

Discussion: Anyone had a trend of their platelets going too low? What action?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

Comment

Yes. I had a Dotatate scan and the cancer has spread to my liver and 20...

https://connect.mayoclinic.org/comment/980712/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 14, 2023

Comment

Was diagnosed in March of this year. Origin in mesentary lining.Metastasized to liver, and elsewhere. I...

https://connect.mayoclinic.org/comment/774825/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Nov 18, 2022

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