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Discussions (128)
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Comment
Hello @fae and welcome to Mayo Connect. I'm glad that you have connected with some of...
https://connect.mayoclinic.org/comment/827197/
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Discussion:
Lanreotide Manufacturers: anyone have experience with either?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 16, 2023
Comment
Thank you so much for your reply. I had an appointment yesterday, and they are planning...
https://connect.mayoclinic.org/comment/843319/
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Discussion:
Recurrence in Liver after Whipple
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 14, 2023
Comment
Just to add on CAP/TEM, it in conjunction with Lanreotide injections, helped my wife reduce her...
https://connect.mayoclinic.org/comment/839791/
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Discussion:
High grade 2 and 3 neuroendocrine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 8, 2023
Comment
I, too, have NET (Ileum), along with several METS. I have been going to Mayo since...
https://connect.mayoclinic.org/comment/134671/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 2, 2018
Comment
Here is an article that I thought you might interesting, about a youngster with NETs who...
https://connect.mayoclinic.org/comment/134557/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 5, 2021
Comment
I’m new to this world of Oncology as well. My dx NET tumor with metastasized to...
https://connect.mayoclinic.org/comment/774811/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 18, 2022
Comment
@lully2505 , how might we help guide you through tour upcoming surgery. My wife had a...
https://connect.mayoclinic.org/comment/938747/
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Discussion:
Found PNET on tail of pancreas but told it’s nonfunctional
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 29, 2023
Comment
Hello @avawein You posted about finding some"hotspots" on your liver after having a CU64 dotatate. I...
https://connect.mayoclinic.org/comment/636362/
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Discussion:
Possible NET with No Evidence of Tumor: Mediastinal Mass
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 17, 2021
Comment
I had NET on the head of my pancreas so the surgery is different from yours....
https://connect.mayoclinic.org/comment/793161/
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Discussion:
Scared - Suspected NET on tail of the pancreas
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 6, 2023
Comment
Is there a pet scan That cat scan the body to see if there are any...
https://connect.mayoclinic.org/comment/1022418/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25 1:46pm
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