Neuroendocrine Tumors (NETs) Support Group

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Comment

My primary NET tumor was surgically removed from the mesentery along with 15 lymph nodes (9...

https://connect.mayoclinic.org/comment/1480992/

Discussion: Anyone had radiation for carcoinoid in Mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 10:39pm

Comment

Of course I’m not a doctor, Kim’s case is after 9 months of chemo, she had...

https://connect.mayoclinic.org/comment/877443/

Discussion: Is it common to start on Lanreotide with no known tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

I appreciate Your follow up. Unfortunately I was disregarded by the oncologist, the only thing that...

https://connect.mayoclinic.org/comment/807767/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Comment

I'm not a Dr, but I Play one on the internet. I think the answer is...

https://connect.mayoclinic.org/comment/808032/

Discussion: Can a second Neuroendocrine tumor appear or is it always metastatic?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

Comment

It’s a long list! Surgery to remove the primary Y90 to address a 50% tumor burden...

https://connect.mayoclinic.org/comment/1123233/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

Comment

I am equally confused with all these scans reports. On 8 July 24, CT scan revealed...

https://connect.mayoclinic.org/comment/1185942/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2024

Comment

Hi Colleen Young, I had a successful 'bland embolization' on my liver. Apparently there is a...

https://connect.mayoclinic.org/comment/1460227/

Discussion: Cryoablation & Cementoplasty Treatment for NET Bone Metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2025

Comment

Hi, Any word about why you have a fatty liver? Any idea? I'm breaking my brain...

https://connect.mayoclinic.org/comment/1376540/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

Comment

Must be. My pancreatic tumor and largest liver lesion started off around the same size 8x6cm....

https://connect.mayoclinic.org/comment/1356881/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2025

Comment

That is great that you had good results with Y90 and you toldetsted well. My husband...

https://connect.mayoclinic.org/comment/1338056/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2025