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Neuroendocrine Tumors (NETs) Support Group

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340 total results
Discussion
First Lanreotide Injection: Any tips about diet and side effects?
https://connect.mayoclinic.org/discussion/first-lanreotide-injection/
Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Mar 15 10:34am
Discussion
Where can I find a carcinoid syndrome specialist in Florida?!
https://connect.mayoclinic.org/discussion/where-can-i-find-a-carcinoid-syndrome-specialist-in-florida/
Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jun 16, 2023
Discussion
Possible NET with No Evidence of Tumor: Mediastinal Mass
https://connect.mayoclinic.org/discussion/possible-net-with-no-evidence-of-tumor/
Hello All! I have had flushing for several years with alcohol, stress, emotions, heat/exercise, and some other foods. I also have cyclical diarrhea. In the...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Nov 2, 2021
Discussion
NETs, Toilet Paper, a rant and a little humor
https://connect.mayoclinic.org/discussion/net-tp-a-little-rant-and-a-little-humor/
NET, the TP crisis, a rant and a little humorI’m sure the irony of the TP “shortage” is not lost on most of us. As...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Mar 27, 2023