Neuroendocrine Tumors (NETs) Support Group

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Thank you! I am 72. They found these carcinoids on CT for colon cancer. I had...

https://connect.mayoclinic.org/comment/963390/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2023

Comment

Hi I am curious about your diagnosis & treatment. What type & stage was your NET?...

https://connect.mayoclinic.org/comment/1350160/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....

https://connect.mayoclinic.org/comment/1220927/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2025

Comment

I had somehow never seen this post until yesterday. I was diagnosed with stage 2A triple...

https://connect.mayoclinic.org/comment/232957/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 7, 2019

Comment

Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...

https://connect.mayoclinic.org/comment/1208016/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Comment

There are only about 300 documented cases of DIPNECH which is why most doctors have never...

https://connect.mayoclinic.org/comment/1205680/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2025

Comment

I joined the NET support group because my father had an intestinal carcinoid tumor; my half...

https://connect.mayoclinic.org/comment/275684/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2019

Comment

@lkent I'm sorry that you have to go through this. While I'm not as well versed...

https://connect.mayoclinic.org/comment/1326346/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

Comment

@mbkcanada, I believe that @tymish17 @tvichkon and @vlpr have mentioned prophylactic brain radiation or prophylactic cranial...

https://connect.mayoclinic.org/comment/1278097/

Discussion: Anyone have Prophylactic Cranial Irradiation (PCI) for SCLC NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2025

Comment

I had been diagnosed with 2 carcinoid tumors ...one in the lower lobe and one in...

https://connect.mayoclinic.org/comment/974703/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2023

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