Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
797 total results
All
Discussions (74)
Comments (723)
Comment
I was diagnosed with atypical carcinoid neuroendicrine tumors in March of 2022. I underwent surgery to...
https://connect.mayoclinic.org/comment/793653/
Copy link to clipboard
Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 7, 2023
Comment
@bdpp- Oh my word life just doesn't give us what we expect or want a lot...
https://connect.mayoclinic.org/comment/232992/
Copy link to clipboard
Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Aug 13, 2019
Comment
I DID GO TO MDA FOR A SECOND OPINION. HOWEVER I AM AN ESTABLISHED PATIENT NOW....
https://connect.mayoclinic.org/comment/801887/
Copy link to clipboard
Discussion:
Stage 4, High-Grade Neuroendocrine carcinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 26, 2023
Comment
Im sorry to hear you are going through that. It is actually my brother. He had...
https://connect.mayoclinic.org/comment/1325183/
Copy link to clipboard
Discussion:
Anyone have lung NETs lining your pleura?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 11 5:16pm
Comment
Hi @ahtaylor -- I love your motto! I have always loved the "Never Give Up" poster...
https://connect.mayoclinic.org/comment/867775/
Copy link to clipboard
Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 27, 2023
Comment
I also have multifocal lung cancer. I am in Rochester now preparing for my CT scan...
https://connect.mayoclinic.org/comment/232767/
Copy link to clipboard
Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Dec 10, 2018
Comment
Hi @jhhaas, I'm tagging fellow members like @mcohan @magnum2 @meryls12 @californiazebra who have experience with DIPNECH...
https://connect.mayoclinic.org/comment/976431/
Copy link to clipboard
Discussion:
Anyone had surgery to remove typical carcinoids of the lung?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 7, 2023
Comment
Hi @shella, I wanted to make sure you saw the helpful post from @merpreb. I have...
https://connect.mayoclinic.org/comment/815207/
Copy link to clipboard
Discussion:
What tumor size is typical for removing part of the lung?
Support Group:
Lung Cancer
Posted: Feb 21, 2023
Comment
The Tumour in my spine is my secondary cancer I have unknown primary. I have had...
https://connect.mayoclinic.org/comment/810621/
Copy link to clipboard
Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2023
Comment
My husband has been fighting this since 2021, he had a tumor removed from his spine...
https://connect.mayoclinic.org/comment/1269480/
Copy link to clipboard
Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29 2:36pm
First
Previous
...
31
32
33
34
35
36
37
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect