Neuroendocrine Tumors (NETs) Support Group

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Comment

I can’t say for sure if NET’s cause pain but from personal experience I will say...

https://connect.mayoclinic.org/comment/1357333/

Discussion: A couple of questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

Comment

My NET was primary in lung (Jan 2023) 3 cm and metastasized to liver stage 1,...

https://connect.mayoclinic.org/comment/1350571/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

Ben, I read your post with interest. I was diagnosed with an inactive, "indolent" lung NET...

https://connect.mayoclinic.org/comment/782212/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2022

Comment

Hi, I've been told I have a few lung carcinoma tumours and so many nodules too...

https://connect.mayoclinic.org/comment/1199724/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

Comment

I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...

https://connect.mayoclinic.org/comment/1098642/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2024

Comment

Hello @woundedwarrior1969 and welcome to the NETs support group on Mayo Connect. I'm pleased that your...

https://connect.mayoclinic.org/comment/911926/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Comment

Interesting. I am on my second cancer - fist lung five years ago, now liver. Now...

https://connect.mayoclinic.org/comment/232728/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My...

https://connect.mayoclinic.org/comment/1349514/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2025

Comment

@shella I had a similar experience. I went to the ER because I was coughing up...

https://connect.mayoclinic.org/comment/815215/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 21, 2023

Comment

My surgery is scheduled for the end of May which is further out than I had...

https://connect.mayoclinic.org/comment/1057584/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2024

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