Neuroendocrine Tumors (NETs) Support Group

Blessings all. I am so encouraged by the many posts and wonderful input as my wife and I are now taking a new turn with...

Hello, I am new to the discussion. My husband was recently diagonosed with nets starting from the pancreas. We are still processing this. Are there...

1. Net's found in 2017 - pancreas / small intestine co- primaries 2. Lanreotide until 2023 when progression was identified including bone metastasis. 3. 4...

Am taking Everolimus for NET which has recently entered pancreas.,any advice as to how long body gets used to it?

My husband just recently had surgery to remove an neuroendocrine tumor that was in the tail of the pancreas. He had a Distal pancreatectomy (pancreatic...

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

Good morning. My name is Michelle. I was just diagnosed with a 2 cm NET in the tail of my pancreas. I am 54 and...

Because of diarrhea issues an endoscopy was preformed and the doctor found something suspicious in the small intestine. Biopsy results said it was indeed a...

My wife has well differentiated, grade 2 stage 4 NET to the terminal illeum (which was removed) w mets to the liver and pancreas -...

My wife has been battling NET bone involvement since 2018 (co- primary sites pancreas and SB found in 2014).Treatments including PRRT (4X) sessions while stabilizing...