Neuroendocrine Tumors (NETs) Support Group

It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...

I am 75. Had right upper lung lobe removed in August 2022Have multiple 5 cm carcinoid tumorettes in lungCould a mass on my adrenal gland...

HiBeen diagnosed with 9mm lung nodule lower left node. Been told it was on old ct since 2017/18 at 4mm and that they are going...

Why does it seem once you get one of these cancers thyroid cancer, lung cancer or breast cancer you all 3? I have had all...

After all the radiation, my oncologists recommend 30 radiations and numerous related ct scans. I wonder if these tumors having been there, one the size...

One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...

I was diagnosed last year with a lung tumor and had my left lower lobe of my lung removed. I was diagnosed with a carcinoid...

I had a typcial stage 1 NET. I had a lobectomy. I started having chills 6 weeks post op. Antibiotics helped. I have fluid around...

I was diagnosed in April 2016 with a Typical Carcinoid Tumor in my right lower lobe, approx. 3 cms. It has remained stable, per most...

Right middle lobectomy in Nov '24 at Mayo Scottsdale. 3 carcinoids removed were all malignant and 1 lymph node involved out of 23 taken. DIPNECH...