Neuroendocrine Tumors (NETs) Support Group

Met with thoracic surgeon today.Two typical carcinoids in right lower lobe.He says he will have to remove the lower lobe because of where they are.Anyone...

I had a RML lobectomy and RLL basilar segmentectomy in September of 2025What is the surveillance protocol forTypical Lung Neuroendocrine CancerKI67 of 3 percentLymp nodes...

I had a triple bypass 6 years ago and at that time they discovered lung nodule. It has been followed with CT scans & slowly...

I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...

I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...

Has anyone had this LNET treated with Radiation and what was your outcome?

It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...

HiBeen diagnosed with 9mm lung nodule lower left node. Been told it was on old ct since 2017/18 at 4mm and that they are going...

I am 75. Had right upper lung lobe removed in August 2022Have multiple 5 cm carcinoid tumorettes in lungCould a mass on my adrenal gland...

I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...