Neuroendocrine Tumors (NETs) Support Group

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Comment

Mel, I responded to you in another discussion but thought I might answer your question here...

https://connect.mayoclinic.org/comment/753729/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2022

Comment

I have 2 NETS in my right lung. I am treating it with homeopathic tinctures, spiritual,...

https://connect.mayoclinic.org/comment/913605/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Comment

Hello, I was diagnosed in March '22 with neuroendocrine atypical carcinoid cancer. I had a partial...

https://connect.mayoclinic.org/comment/805534/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

Comment

Welcome @sueannsellers. I'm glad to hear that you are being referred to Mayo Clinic for consultation...

https://connect.mayoclinic.org/comment/806557/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

Hi Ken, Hope all is well with you. I received all good news from my bloodwork...

https://connect.mayoclinic.org/comment/1080190/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2024

Comment

I have the same. I did have radiation on my left lung, SBRT, on two tumors....

https://connect.mayoclinic.org/comment/1242728/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22 6:44am

Comment

Seeing Oncologist on Tuesday CT showed a 10mm at my thyroid, First lung tumor removed (NET)...

https://connect.mayoclinic.org/comment/1316439/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30 10:13am

Comment

While I haven’t been diagnosed with DIPNECH I am 2 years into my treatment journey living...

https://connect.mayoclinic.org/comment/1070929/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Comment

Hi I was diagnosed in June of2021 with lung to liver net Ki67 1-5% with two...

https://connect.mayoclinic.org/comment/813436/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

Hi @aclanton @terradean My largest 2.6 cm tumor was destroyed with microwave ablation. Not a fun...

https://connect.mayoclinic.org/comment/1076548/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

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