Neuroendocrine Tumors (NETs) Support Group

I was surprised this morning by an unexpected call from my surgical oncologist. I saw him mid-January and after another MRI (I had one in...

As I promised I would after 3 months of lanreotide injections I’m reporting the results of my oncologist’s CT scan with contrast to determine whether...

Had what I thought was a bad stomach bug, turned out to be a neoindicrine tumor blocking my small intestine with lymph node involvement. Had...

4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...

Has anyone had positive results from Lanreotide injections? Tumors in remission or shrinking?

I have had a full whipple in March 2019. In March 2023 I was diagnosed with neuroendocrine liver metastases (NELM), Grade 2. Since June 23...

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and...

My partner was diagnosed w a stage 4 grade 2 pancreas origin NET. She has started lanreotide & is having diarrhea and then very bad...

NET monthly Samotuline Depot injections seem to cause increasing sores on face and around exterior lips. Help!

last scan showed huge mass in mediastinum, biopsy showed sarcoid-like reactivity to malignancy but no one has put eyes on it, coming to Mayo in...