Neuroendocrine Tumors (NETs) Support Group

I was surprised this morning by an unexpected call from my surgical oncologist. I saw him mid-January and after another MRI (I had one in...

As I promised I would after 3 months of lanreotide injections I’m reporting the results of my oncologist’s CT scan with contrast to determine whether...

4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...

last scan showed huge mass in mediastinum, biopsy showed sarcoid-like reactivity to malignancy but no one has put eyes on it, coming to Mayo in...

I will begin my Lanreotide injections tomorrow afternoon. Is there anything to be concerned about? Were you able to drive home? How did you feel...

Has anyone had positive results from Lanreotide injections? Tumors in remission or shrinking?

I have had a full whipple in March 2019. In March 2023 I was diagnosed with neuroendocrine liver metastases (NELM), Grade 2. Since June 23...

My partner was diagnosed w a stage 4 grade 2 pancreas origin NET. She has started lanreotide & is having diarrhea and then very bad...

NET monthly Samotuline Depot injections seem to cause increasing sores on face and around exterior lips. Help!

If first scan shows interval progression while on lanreotide only, is captem the next step? Seeing doctor Monday)