Neuroendocrine Tumors (NETs) Support Group

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Comment

Mary, Thank you so much for reaching out and providing this info. I just emailed Dave...

https://connect.mayoclinic.org/comment/184523/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2018

Comment

Hi! My name is Nancy and I live in Cape Coral, Florida. I have been to...

https://connect.mayoclinic.org/comment/39442/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2018

Comment

Hi Faith: I went to the NIH in April, 2016. My mom never went there. She...

https://connect.mayoclinic.org/comment/163589/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2017

Comment

Yes, @joannem, Carcinoid cancer is difficult to explain. I always say that it is a rare...

https://connect.mayoclinic.org/comment/102040/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2017

Comment

Hello @tresjur and welcome to Mayo Connect. I appreciate your attitude and the "glass half-full" approach...

https://connect.mayoclinic.org/comment/101994/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2016

Comment

Dear Gaylejean: If you would like to find a carcinoid support group in your area here...

https://connect.mayoclinic.org/comment/101983/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

Comment

Hi. I have been experiencing excruciating and debilitating joint and muscle pain for several months now....

https://connect.mayoclinic.org/comment/289800/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2020

Comment

Update on my son…. It’s actually a lot but will cut to chase. He had surgery...

https://connect.mayoclinic.org/comment/1409859/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2025

Comment

@delliot I appreciate you clarifying about being "medically lonely." I understand how surprising it is to...

https://connect.mayoclinic.org/comment/1410727/

Discussion: Adrenocortical carcinoma (ACC) outcomes: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

@hopeful33250 thank you so much for the wonderful information. I appreciate it very much. I live...

https://connect.mayoclinic.org/comment/1415840/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

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