Neuroendocrine Tumors (NETs) Support Group

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Comment

Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4...

https://connect.mayoclinic.org/comment/1268153/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27 3:47pm

Comment

I have only had the every 28 day injections I did lanreotide for 3 months (3...

https://connect.mayoclinic.org/comment/820017/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Comment

But what does the octreotide do to you? From what I've found when web searching, it...

https://connect.mayoclinic.org/comment/1254930/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 3:27pm

Comment

Sophiarose, Octreotide is used to help manage the effects of neuroendocrine tumors such as flushing and...

https://connect.mayoclinic.org/comment/830230/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

My husband started Roth Octreotide & has now switched to Lanreotide, both shots makes him itch...

https://connect.mayoclinic.org/comment/1334316/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24 2:03pm

Comment

I have been told by multiple oncologists that along with managing symptoms it also inhibits the...

https://connect.mayoclinic.org/comment/1345975/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 2:28pm

Comment

Since you have 5 lung NETs, read up on DIPNECH which is something some of us...

https://connect.mayoclinic.org/comment/1359327/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29 1:55pm

Comment

In January I was diagnosed with NETs in my stomach. My GI doctor said I had...

https://connect.mayoclinic.org/comment/835868/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

My brother's medical oncologist did not put him on Octreotide (that is what his office uses)...

https://connect.mayoclinic.org/comment/877307/

Discussion: Is it common to start on Lanreotide with no known tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

I am currently having SBRT to radiate 2 carcinoid lung tumors that are 1.5 cm. They...

https://connect.mayoclinic.org/comment/838553/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

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