Neuroendocrine Tumors (NETs) Support Group

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Comment

I also responded to you on another thread about fatigue, hair thinning, blood sugar spikes and...

https://connect.mayoclinic.org/comment/1174579/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2024

Comment

I have had a 111IN-Octreotide in 2013, and in 2014 a F-18 FDG PET/CT of the...

https://connect.mayoclinic.org/comment/186246/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2018

Comment

I'm currently taking Lanreotide. I have taken Octreotide as well. It is so hard to separate...

https://connect.mayoclinic.org/comment/1391715/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2025

Comment

This is @amd12. I wasn't actually diagnosed with DIPNECH, but I was told that I seemed...

https://connect.mayoclinic.org/comment/772509/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Comment

I have GERD too. Before my DIPNECH and lung NETs was diagnosed even though we knew...

https://connect.mayoclinic.org/comment/1329913/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Comment

@jhhaas I’m curious. You listed a lot of symptoms but said you haven’t needed treatment shots...

https://connect.mayoclinic.org/comment/1205397/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2025

Comment

This is my 6 years trying to get information for having Neuroendocrine Cancer, lung Nets! I...

https://connect.mayoclinic.org/comment/1203278/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2025

Comment

@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...

https://connect.mayoclinic.org/comment/1181823/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

Hi, Sandostation Octreotide 30mg. He had the last one two weeks ago on a Friday. I...

https://connect.mayoclinic.org/comment/832647/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2023

Comment

@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....

https://connect.mayoclinic.org/comment/962492/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2023

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