I am wondering if there happens to be any other patients out there who are similar to me. Starting almost 10 years ago I have had continual problems with various endocrine glands and hormone levels produced by those glands. Below is an overview:
• 2008 – diagnosed with diabetes
• 2008 – Parathyroid hormone levels low, but my calcium levels were fine.
• 2009 – diagnosed with multiple thyroid nodules that resulted in total thyroidectomy
• 2012 – High, TSH, ACTH, Urinary Cortisol, Salivary Cortisol continued to test high for over 3 years.
• 2012 – High testosterone, which did return to normal, but in 2016 it returned and has remained High ever sense, along with high SHBG, DHEA-S etc.
• 2016 – Developed severe hypoglycemic episodes, they continue to occur, but have occurred less after reducing gluten in my diet.
The adult has eight main endocrine glands, I have had proven abnormal hormone levels from at least six of these glands.
• Pituitary – High ACTH
• Thyroid – High TSH, thyroid nodules, thyroid removed
• Adrenal – High Urinary cortisol, High salivary cortisol
• Pancreas – Diagnosed with diabetes (High glucose), hypoglycemic episodes
• Testicles – High testosterone
I have seen doctors at Mayo and Vanderbilt as well as my local doctors, but have yet to find any explanations as to what is going on. I have been given possible causes of Cushing’s, however they are not able to locate a tumor. A neuroendocrine tumor that changes the type of hormones it makes would make sense as well, or some type of issue with communication between the varies endocrine glands that is messed up.
Anyhow thought I would post this in the Autoimmune area as that is one place I have looked for answers over the years, in hopes someone else may have information that could help.
Thanks for your time.