Neuroendocrine Tumors (NETs) Support Group

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Comment

I appreciate your kind remarks, @pamela1685. So many of on Connect have experienced a myriad of...

https://connect.mayoclinic.org/comment/1173905/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2024

Comment

Hello All .My name is Ladonna I live in Az now so went to seed Doctor...

https://connect.mayoclinic.org/comment/1173048/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 13, 2024

Comment

Yes, they want to do a needle biopsy. They say there slow growing so they want...

https://connect.mayoclinic.org/comment/1169811/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Comment

@wilhelm I strongly agree w Teresa, Volunteer Mentor. When my NET on my carotid artery was...

https://connect.mayoclinic.org/comment/1166076/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024

Comment

My dipnech was also found by chance, I had fallen down some steps and landed on...

https://connect.mayoclinic.org/comment/1143736/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

I am 75 and was diagnosed 6years ago, I had half my right lung removed and...

https://connect.mayoclinic.org/comment/1142704/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

@htam4- I live in Syracuse, NY. We have a very good Cancer center and I had...

https://connect.mayoclinic.org/comment/1089671/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2024

Comment

My tumor was around the tail of the pancreas, so I had distal pancreatectomy and splenectomy....

https://connect.mayoclinic.org/comment/1088225/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Comment

I live within reach of Memorial Sloan Kettering so called just to get a 2nd opinion....

https://connect.mayoclinic.org/comment/1087269/

Discussion: On choosing a surgeon for pulmonary carcinoid resection…

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2024

Comment

I am in Florida. I feel lucky to be so close to Mayo Clinic. They do...

https://connect.mayoclinic.org/comment/1054510/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

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