Neuroendocrine Tumors (NETs) Support Group

I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland....

I was diagnosed with metastatic neuroendocrine cancer in the liver 4cm x 3.1 cm in Sept. Grade 2, non-functioning, well differentiated KCI 6-8%. My MRI...

Hi UK based where mcas is poorly understood I have been diagnoses with autoimmune gastritis in the last few weeks Symptoms over the last few...

my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...

Hello everyone. I am new to this site and this is my first post. I had a routine colonoscopy in March and found that I...

My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...

Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...

Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...

Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...

Hello all. My Info. (Retired 2022. ECMO Specialist Perfusion/Registered Respiratory Therapist and 35 years in Critical healthcare)Severe Asthma(environmental) my whole life. Never smoked. A glass...