Neuroendocrine Tumors (NETs) Support Group

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Comment

I had y-90 treatment on both sides of my liver. Mapping was done and couple weeks...

https://connect.mayoclinic.org/comment/1174717/

Discussion: Radio Embolization Is My Next Step

Support Group: Neuroendocrine Tumors (NETs)

Posted: 23 hours ago

Comment

I am recently diagnosed with metastatic neuroendocrine tumors in my liver. No know origin. Grade 2...

https://connect.mayoclinic.org/comment/1171826/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

Comment

The liver is where it has started; as a result of a scan and a biopsy....

https://connect.mayoclinic.org/comment/267669/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2019

Comment

I also was 48 when first diagnosed with NETs. My primary care Dr. totally missed the...

https://connect.mayoclinic.org/comment/277071/

Discussion: I am not ok with this at all

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2019

Comment

Thank you for your post. I have small bowel primary NETs with liver met only diagnosed...

https://connect.mayoclinic.org/comment/786233/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Comment

I have been on Lanreotide injections since March 2023. I have Stage 4 pNET with liver...

https://connect.mayoclinic.org/comment/899254/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Hi there Vinnie, I was recently diagnosed with the same, metastasized to liver. Did you have...

https://connect.mayoclinic.org/comment/903584/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

Comment

This was very interesting. My SIL has NET in liver (started in pancreas). She is doctoring...

https://connect.mayoclinic.org/comment/761053/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2022

Comment

Hi Sandi You are a blessed person 19 year. Wow!!!! I was on lanreotide and had...

https://connect.mayoclinic.org/comment/746905/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2022

Comment

Diazoxide is only med prescribed to help hypoglycemia caused by endocrine tumors. If cornstarch worked they...

https://connect.mayoclinic.org/comment/934254/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

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