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Discussions (69)
Comments (698)
Comment
Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...
https://connect.mayoclinic.org/comment/835869/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
@melmangen, might Mayo Clinic in Jacksonville, Florida be an option for you? Mayo Clinic, Florida has...
https://connect.mayoclinic.org/comment/753620/
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Discussion:
Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 25, 2022
Comment
Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...
https://connect.mayoclinic.org/comment/1142739/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 17, 2024
Comment
Hello @amd12 You mentioned in your last post that you would be having another scan to...
https://connect.mayoclinic.org/comment/792439/
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Discussion:
Pancreatic NF-NET stable since 2005 - surgery or not?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 4, 2023
Comment
@jukebox42 Sorry you feel stressed. Is this a new diagnosis for you? I posted about octreotide...
https://connect.mayoclinic.org/comment/1254968/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 10 4:47pm
Comment
Thank you Colleen. They have done following tests in order below Xray - saw a mass...
https://connect.mayoclinic.org/comment/794480/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 9, 2023
Comment
Hi @ce1b -- I think you have a great attitude. I agree with your thoughts. Is...
https://connect.mayoclinic.org/comment/861470/
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Discussion:
Net unknown cause of breathing problems
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 17, 2023
Comment
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2023
Comment
Seeing Oncologist on Tuesday CT showed a 10mm at my thyroid, First lung tumor removed (NET)...
https://connect.mayoclinic.org/comment/1316439/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 30 10:13am
Comment
@hopeful33250 Hi Teresa, You are correct that they did not suggest surgery for me. The reason...
https://connect.mayoclinic.org/comment/861413/
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Discussion:
Net unknown cause of breathing problems
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 17, 2023
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