Neuroendocrine Tumors (NETs) Support Group

I was surprised this morning by an unexpected call from my surgical oncologist. I saw him mid-January and after another MRI (I had one in...

Hello everyone, looking for some help and information. I have recently diagnosed with duodenal neuroendocrine tumor Grade 1 as per Endoscopy biopsy report. After that...

I was diagnosed with MCC and had surgery and followed with 30 treatment of radiation on the right side of my head, cheek and neck.The...

Hi, I was diagnosed with NETS last May. Since I have had open heart surgery to replace the two valves on the right side of...

Hello. I’m thinking this may have been discussed before. Sorry if I’m asking an old question Is everyone with a pNET on Creon. Pancreatic enzymes...

I have had a full whipple in March 2019. In March 2023 I was diagnosed with neuroendocrine liver metastases (NELM), Grade 2. Since June 23...

It turns out that my husband has actually had this since at least 2014 when he had most of his pancreas removed as well as...

I’m declining rapidly since last October 2021. My tumor markers Chromogranin A and CA 19.9 (not even mentioning D Dimers) were elevated and my GI...

I had my first Lanreotide injection four days ago on Monday, but was not told of any diet restrictions. I've seen that I should eat...

Hi my name is Audra and I was diagnosed with Carcinoid Cancer in 2016. I drove myself to the ER with severe pain and had...