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Discussions (69)
Comments (698)
Comment
I was diagnosed with a lung disorder - DIPNECH. I’m looking to connect with others who...
https://connect.mayoclinic.org/comment/987590/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 28, 2023
Comment
Lots of variety for you. Interesting (and good) that all your nodules are in one lung....
https://connect.mayoclinic.org/comment/1229577/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4 6:28pm
Comment
I have lung nets.... along with 1 Adenocarcinoma. The top right lobe and parts of the...
https://connect.mayoclinic.org/comment/1323823/
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Discussion:
Anyone have lung NETs lining your pleura?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 9 3:59pm
Comment
Hi Larenn, May I ask how large your lung tumor and subcutaneous nodule were? I have...
https://connect.mayoclinic.org/comment/825153/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 12, 2023
Comment
In addition to sharing more detail about your DIPNECH symptoms, in what way do you not...
https://connect.mayoclinic.org/comment/1108016/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2024
Comment
@lkent I'm sorry that you have to go through this. While I'm not as well versed...
https://connect.mayoclinic.org/comment/1326346/
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Discussion:
Anyone have lung NETs lining your pleura?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 13 10:46am
Comment
Welcome to Connect: I was diagnosed with Non Small Cell Adnocarcinoma 11 year ago with a...
https://connect.mayoclinic.org/comment/134278/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 18, 2018
Comment
Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...
https://connect.mayoclinic.org/comment/1067425/
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Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2024
Comment
@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...
https://connect.mayoclinic.org/comment/1181823/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 29, 2024
Comment
Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...
https://connect.mayoclinic.org/comment/1227266/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 1 8:00pm
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