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Discussions (73)
Comments (721)
Comment
Thank you for your reply I'm here in UK an there are not many support groups...
https://connect.mayoclinic.org/comment/1328821/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 17 3:09am
Comment
Lots of variety for you. Interesting (and good) that all your nodules are in one lung....
https://connect.mayoclinic.org/comment/1229577/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4 6:28pm
Comment
I have lung nets.... along with 1 Adenocarcinoma. The top right lobe and parts of the...
https://connect.mayoclinic.org/comment/1323823/
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Discussion:
Anyone have lung NETs lining your pleura?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 9 3:59pm
Comment
Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...
https://connect.mayoclinic.org/comment/1067425/
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Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2024
Comment
In addition to sharing more detail about your DIPNECH symptoms, in what way do you not...
https://connect.mayoclinic.org/comment/1108016/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2024
Comment
Where did you do the trial at in Florida? Currently I am with Moffitt Cancer Center,...
https://connect.mayoclinic.org/comment/749790/
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Discussion:
Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 15, 2022
Comment
Welcome to Connect: I was diagnosed with Non Small Cell Adnocarcinoma 11 year ago with a...
https://connect.mayoclinic.org/comment/134278/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 18, 2018
Comment
I did 5 rounds of sbrt for a lung carcinoid. It went very well and destroyed...
https://connect.mayoclinic.org/comment/1025801/
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Discussion:
My husband has had his second PRRT and is doing well!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 2, 2024
Comment
@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...
https://connect.mayoclinic.org/comment/1181823/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 29, 2024
Comment
Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...
https://connect.mayoclinic.org/comment/1227266/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 1 8:00pm
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