Neuroendocrine Tumors (NETs) Support Group

Presented to ER with shortness of breath, chest pain and severe pain to both legs. Incidentally found pancreatic Neuroendocrine tumor. Ct/MRI done and surgeon confirms...

My partner (grade 2, stage 4 PNET) has an unrelated tooth implant to do & that involves mixing bone & blood to build up the...

Hello everyone, I have surgery coming at the end of this month for a PNET on my pancreas. Dr’s will be performing spleenectomy and distal...

I had a distal pancreatomy with splenectomy on March 10th for NET in pancreas. All was well. Good recovery. Went on Monday for my 6months...

I found out there is a 8mm pNET at the tail in the beginning of September. The Ga68 PET scan is negative. My appointment with...

Hi! During a stroke work up a CT scan on my chest discovered a 16 cm mass in my abdomen. Multiple MRI, CT, PET (Gadolinium)...

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

Started Everolimus for pancreatic Neuroendocrine cancer with Mets to liver and bone diagnosed four years ago. Was 49 when diagnosed. Had TACEx4, IV radiation(PRRT) x4,...

Hello everyone, yesterday on February 24,2023 I underwent a distal pancrectomy and a spleenectomy. I am am posting this comment from my hospital room. I...

PNET Grade 2 (K-67 3.2%) in tail of pancreas, both portal and splenic veins. No mets to liver or spleen. Just finished 3rd round of...