Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
103 total results
Discussion
Merkel cancer update
I have stage 3 Merkel cell carcinoma under my left eye and facial surgery showed cells in a lymph node in the cheek. I have...
Last active: May 7 5:24pm
Discussion
Merkel Cell Carcinoma: Immunotherapy while on antirejection meds
I was diagnosed with MCC and had surgery and followed with 30 treatment of radiation on the right side of my head, cheek and neck....
Last active: Oct 27, 2022
Discussion
Keytruda, an immunotherapy drug, is shrinking the Merkel Cell tumors
I’m trying not to get too excited that I have responded so well to the immunotherapy treatments. The tumors have all shrunk significantly and I...
Last active: Jul 25, 2023
Discussion
Merkel Cell Carcinoma: I'd like to hear from others
I am new here, and just last month my mom was diagnosed with Merkel Cell. She had a large tumor on her face. I am...
Last active: Oct 20 7:30pm
Discussion
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...
Last active: Oct 2, 2023
Discussion
What’s the best care option for live alone senior during radiation?
Biopsy results for suspicious Merkel Cell carcinoma on nose expected next week. I’m 75, live alone and wondered if it’s best to invest in temporary...
Last active: May 29 2:40pm
Discussion
NIH clinical study looking for the gene causing carcinoid cancer
My nephew recently became the third family member to have a NET diagnosis - his a Merkel Cell carcinoma. My father's was carcinoid of the...
Last active: Aug 13, 2017