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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Laproscopic Liver Ablation
Has anyone had a laproscopic liver ablation for their mets? Curious about the experience and recovery. Thanks and wishing everyone here who share their NETs...
Last active: Jul 4 2:27am
Discussion
Itch with liver pNets
Has anyone experienced intense bouts of overall body itch as result of liver malfunctioning due to pNets metastasis to liver?
Last active: 15 hours ago
Discussion
NETs: Anyone has Liver debulking for liver metastasis?
I am interested in hearing from anyone who may have recently had liver debulking surgery due to mets to the liver? thanks. MKMN
Last active: Dec 29, 2022
Discussion
Radioembolization for liver tumors fromNETS
I am going to undergo a procedure,TARE,trans arterial radioembolization, for pNets metastasis to liver. Anyone else had this procedure?
Last active: 3 days ago
Discussion
Dotatate lights only in liver, but report says metastatic to liver?
Cat Scan shows 4x3 cm mass in liver and lesions in other lobe. Biopsy results neuroendocrine liver tumor. KI-67 6-8%. Synaptophysin and CK Cam positive....
Last active: Nov 4, 2024
Discussion
Liver and Pancreas Stable
Blessings all. I am so encouraged by the many posts and wonderful input as my wife and I are now taking a new turn with...
Last active: Jun 30, 2025
Discussion
Neuroendocrine Carcinoma with Liver Metastasis
So first of all Hi! I’m Carrie and live in Alberta Canada. Just diagnosed and started chemotherapy for my cancer that started in my bowels...
Last active: Sep 19, 2025
Discussion
Newly diagnosed with NET in liver
Hello - and so grateful to find this group. I just received the diagnose earlier this week and have been trying to find info. Trying...
Last active: Dec 11, 2022
Discussion
Liver Transplant to Treat NETs
Kim is about to complete her 2nd of 4 scheduled PRRT treatments, with scheduled PET scan and CAT scan to review progress before treatment #3....
Last active: Oct 25, 2023
Discussion
Bland Liver Embolization complication
6/13/23 bland liver embolization 2 weeks later hospitalization with severe pain and spasms pain has gotten less but still debilitating CT shows hepatic infraction along...
Last active: Sep 9, 2023