Neuroendocrine Tumors (NETs) Support Group

I am interested in hearing from anyone who may have recently had liver debulking surgery due to mets to the liver? thanks. MKMN

We have been getting the Sandostatin Car 30 mg. shot for the last six months and now the tumor has grown by 1 cm. We...

Anyone been treated for Carcinoid liver cancer?

Cat Scan shows 4x3 cm mass in liver and lesions in other lobe. Biopsy results neuroendocrine liver tumor. KI-67 6-8%. Synaptophysin and CK Cam positive....

So first of all Hi! I’m Carrie and live in Alberta Canada. Just diagnosed and started chemotherapy for my cancer that started in my bowels...

Hello - and so grateful to find this group. I just received the diagnose earlier this week and have been trying to find info. Trying...

6/13/23 bland liver embolization 2 weeks later hospitalization with severe pain and spasms pain has gotten less but still debilitating CT shows hepatic infraction along...

Kim is about to complete her 2nd of 4 scheduled PRRT treatments, with scheduled PET scan and CAT scan to review progress before treatment #3....

I had a Whipple procedure in March 2019 with no traces of NEC left behind. In Feb 2023 my scan confirmed recurrence in Liver, largest...

Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...