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gaylejean
@gaylejean

Posts: 54
Joined: May 11, 2016

Embolization

Posted by @gaylejean, Sep 18, 2018

I would like to hear from anyone who has embolization of their liver for the purpose of stopping/slowing growth of a metastatic tumor there.

REPLY

Hi @gaylejean

Since you posted about embolization in September and there were no responses, I was wondering how you were doing.

Has it been suggested to you to have an embolization of the liver?

I had an embolization on 9/26 and am due to schedule another one. The procedure went well. With my "touchy" stomach (doesn't like antibiotics or pain medicine so was nauseous and stayed two nights in the hospital. I feel pretty good now – some days I am really tired with no energy.

I appreciate your posting about this experience with embolization, @gaylejean. I am glad to hear that it went well.

If you care to share more, is this done through an incision or laparoscopic type of procedure?

A thin catheter through the groin under light sedation. Has anyone else had this done and what was their experience?

@gaylejean
Other Members on Connect have not responded regarding this procedure. Perhaps they have used other treatment options.

Is this embolization being done at Mayo?

Yes it was

I had surgery five years ago for nets in my small intestine which had spread into lymph nodes and liver. Just had gamma scan in November which lit up in liver. Had MRI and unsuccessful liver biopsy. Have another MRI in week. Dr talked about the liver embolization as a one of forms of treatment. Would also like to learn more about it.

Hello @feebee and welcome to Mayo Clinic Connect's discussion about NETs. Personally, I am a survivor of three surgeries for NETs of the duodenal bulb.

If you are comfortable sharing more: what type of surgery did you have five years ago? Have you had symptoms of carcinoid syndrome? As you probably know it is important to seek a consult with a NET specialist (rather than a general oncologist). Here is listing of NET specialists throughout the world, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

I would like to invite a Member of our group, @gaylejean, who has personally had liver embolization last September and will be having another. In addition, I would like to invite @tresjur, to this conversation. Although, she has not had embolization she does have NETs in the liver and she might be willing to offer some information based on her experiences as well.

How are you feeling, @feebee?

Hello @feebee
I found some information about liver embolization at the Carcinoid Foundation website. Here is the link, https://www.carcinoid.org/?s=liver+embolization

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