Neuroendocrine Tumors (NETs) Support Group

I am interested in hearing from anyone who may have recently had liver debulking surgery due to mets to the liver? thanks. MKMN

We have been getting the Sandostatin Car 30 mg. shot for the last six months and now the tumor has grown by 1 cm. We...

Anyone been treated for Carcinoid liver cancer?

Cat Scan shows 4x3 cm mass in liver and lesions in other lobe. Biopsy results neuroendocrine liver tumor. KI-67 6-8%. Synaptophysin and CK Cam positive....

So first of all Hi! I’m Carrie and live in Alberta Canada. Just diagnosed and started chemotherapy for my cancer that started in my bowels...

Hello - and so grateful to find this group. I just received the diagnose earlier this week and have been trying to find info. Trying...

6/13/23 bland liver embolization 2 weeks later hospitalization with severe pain and spasms pain has gotten less but still debilitating CT shows hepatic infraction along...

Kim is about to complete her 2nd of 4 scheduled PRRT treatments, with scheduled PET scan and CAT scan to review progress before treatment #3....

I had a Whipple procedure in March 2019 with no traces of NEC left behind. In Feb 2023 my scan confirmed recurrence in Liver, largest...

Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

HiHas anyone had stretching of the liver capsule? Slight pain in upper abdominal now and then and last scan three weeks ago was stable.Not sure...

hi, does anyone have swelling in the ankles in face along with their liver metastases thanks

Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.

Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...

I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...

Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance...

Looks like this is the place to ask if anyone has been thru this.My mother was diognosed in March with a 5cm low grade NET...

About one month ago I received bland embolization for NETs in my liver. The fatigue post op has been almost debilitating. I’m looking for anyone...

Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...