Neuroendocrine Tumors (NETs) Support Group

I am interested in hearing from anyone who may have recently had liver debulking surgery due to mets to the liver? thanks. MKMN

Cat Scan shows 4x3 cm mass in liver and lesions in other lobe. Biopsy results neuroendocrine liver tumor. KI-67 6-8%. Synaptophysin and CK Cam positive....

Blessings all. I am so encouraged by the many posts and wonderful input as my wife and I are now taking a new turn with...

So first of all Hi! I’m Carrie and live in Alberta Canada. Just diagnosed and started chemotherapy for my cancer that started in my bowels...

Has anyone else been diagnosed with Neuroendocrine carcinoma cancer that has also had a liver transplant in the past? If so, I’d love to hear...

6/13/23 bland liver embolization 2 weeks later hospitalization with severe pain and spasms pain has gotten less but still debilitating CT shows hepatic infraction along...

Kim is about to complete her 2nd of 4 scheduled PRRT treatments, with scheduled PET scan and CAT scan to review progress before treatment #3....

Newly diagnosed. Tumors in my liver from GI. Has anyone had surgery to remove the liver tumors? Or GI tumor? Thanks, Tara

Hello - and so grateful to find this group. I just received the diagnose earlier this week and have been trying to find info. Trying...

I had a Whipple procedure in March 2019 with no traces of NEC left behind. In Feb 2023 my scan confirmed recurrence in Liver, largest...

Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

HiHas anyone had stretching of the liver capsule? Slight pain in upper abdominal now and then and last scan three weeks ago was stable.Not sure...

In reference to my wife: Recent C/T of abdomen and pelvis showed "increased hypervascularity in the haptic metastasis in the caudate". Initial discovery Background: NET...

Hello all, I wanted to start a discussion on a finding from a CT Scan I had yesterday and hope I am in the right...

hi, does anyone have swelling in the ankles in face along with their liver metastases thanks

Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...

I’ve included a photo of my liver Mets in case others are interested in what it actually looks like. Photo was taken by NETS surgeon...

Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...

I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...