Neuroendocrine Tumors (NETs) Support Group

Hola buenas tardes. Mi nombre es Gustavo. Soy de Buenos Aires , Argentina. A mí esposa le extirparon un tumor neuroendocrino secretor de ACTH, lo...

My CHROMOGRANIN A test shows a reading 0f 1971 what does this mean. I completed throat cancer 3 months ago and was informed it is...

I'm 5'8", age 62 years. I now weigh 133 lbs, 25 lbs lost since last Spring. I self-ordered a group of cancer marker tests, all...

Does anyone know how much CGA results can vary from lab to lab. Following are the last four CGA results for my wife: 75 (11/16...

I’m not sure if I’m in the right place or not but I started this conversation here bc my Levels were so high. Has anyone...

I had stage 4 neuroendocrine cancer 3 years ago. They removed 55 % of my liver to remove 3 tumors and 17 inches of my...

I had my first Chromogranin A blood test in 2021. 2 months after I had the lower lobe of my left lung removed due to...

I was recently diagnosed with PNETS saw an oncologist and had a second opinion through University of Kansas. Through that session I learned my tumors...

My husband's labs are all indicating NET. His Chromogranin levels are 2474 and repeated is 1944. PET Scan did not light up. Next week is...

Lanreotide Manufacturers Approved products are manufactured by Ipsen and Cipla - does anyone have experiences when the the two products are used in ones' NET...

Hi, I’m 48 years old. I’ve been seeing doctors for years because of profound fatigue, headaches, trouble swallowing and on and on. Basically have been...

High grade neuroendocrine carcinoma (small cell carcinoma) of the bladder.The tumour cells express CK (weakly), Synaptophysin, Chromogranin and TTF-1.They are immunonegative for GATA-3 and p63.The...

Hi ..i did distal pancréatectomy with splectomy since 2 years..it was Pnet grade 2 ..last year my MRI was clean..now since 2 week minimum i...

I recently had a routine EGD and a polyp/tumor was removed and the pathology report stated a diagnosis of "well-differentiated neuroendocrine tumor, Grade II". My...

It's been 5 years since my Carcinoid was removed from my colon (Ilium). At that time, they found it had also spread to 2 of...

Hi, my name is Mikhail, im from Moscow, Russia. I have had NET of small incestine, surgery in july, 2023. G1, ki67-2%, pT1NOMO. Need to...

My 15 year old daughter had a 0.8cm appendiceal tumor in the distal end(mesoappendix and subserosal involvement) removed in July 2023. Since then she has...

I am a bit concerned and not sure if I am overreacting, but my GI doctor wants me to have a NetSpot scan done. I...

I'm a 41 yr old male and for the last 16 months I have had almost daily flushing (face, ears, chest, upper back/shoulders) episodes along...

I was diagnosed late February 2025 by liver lesion biopsy with neuroendocrine grade 2, well differentiated. Ga68 Dotatate Pet scan end of March confirmed pancreas...