Chromogranin A level almost 1800!?!

@hammerhead225: The ChrimograninA blood test is only one of many tests our NET specialists use to evaluate our disease. The number can vary greatly. If I were you I would address this test with doc when the other test results are in. The Dotatate PET & Evoist MRI will visualize your tumors with comparison to tumor size and position. This will lead to treatment options. You need to educate yourself on our disease and the terminology used in your discussions with NET specialist medical oncologists - read & take notes of the Mayo Connect Neuroendocrine discussions on this site and others you will find online. Many lectures are available to listen to NET experts on LACNETS group discussions.
You have some homework to do, the good news is the more NET info you can absorb, the better decisions you will be confident in making to control your tumors and prognosis.
I got a 2nd opinion from my local oncologist - I researched & travelled to City of Hope Cancer Medical Facility in Duarte, CA; however many University Medical Centers have Neuroendocrine Specialists.
The hope this post is helpful and will give you patience until you get all the test results you need to have before consulting with a NET specialist.
You can do this! Hug to you. dbamos1945

@hammerhead225 Hi and welcome to Mayo Connect. Like @dbamos1945 said, there are a battery of tests to diagnose and treatment plan for NETs. It is a process and patience will serve you better than freaking out. Most of us have freaked out too, so we understand. Education is key. Here is a link to Mayo Clinic's Neuroendocrine Tumors page. I believe it is a good baseline to understand NETs. Please let us know, if you have any additional questions or concerns. I have learned so much from other NETs patients and caregivers here. Welcome to the family.
https://www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors/symptoms-causes/syc-20354132

I agree 100% with everything @dbamos1945 said.
Here's some resource links to help you start educating yourself fully on nets
https://netrf.org/for-patients/newly-diagnosed/
https://www.ncf.net/newlydiagnosed
As to your initial question about chromogranin A, it's not generally considered to be a super reliable marker as there are many things that can effect the results, the most common being the use of PPI's, such as pepcid.
Are you seeing a net specialist? This is very important to ensure that you receive the proper approach to treating you. Most general oncologists don't have the required knowledge and experience to best treat this disease due to its rarity. All Mayo locations have net teams and are wonderful.
You can also find a directory of specialists by state on the netrf site that I linked.
This will be a long journey. But there are so many great treatment options out there. There are many out there who are living life many, many years after diagnosis, my husband included who was diagnosed Stage 4 in 2008.
Hang in there! You've got this!

Like the others have said be ready to learn all you can. My original diagnosis was in 12/21 and an oncologist told me I had stage 4 cancer and he would start chemo. Since he had been testing by MRIs for 8 months before finally ordering a biopsy, I was more prepared than he expected! I immediately rejected chemo and asked for other options, so he referred me to a NET specialist in Dallas (3 hours away). The first oncologist told my husband I would only live 4-6 months without chemo (he has since retired). I am currently doing no treatment and living my life as well as possible going on 4 YEARS later! BTW, one of the first things my NET specialist told me that I would die with not of my NET cancer!
Educate yourself and become your own patient advocate!