Neuroendocrine Tumors (NETs) Support Group

I am considering surgery for neuroendocrine tumors metastatic to the liver. I have about 6-7 tumors that are visible on MRI. One surgeon told me...

What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...

My 70 yr old husband had small bowel tumor Grade 1 resected due to bowel obstruction. Dotatate Petscan revealed other areas in pelvic region and...

Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...

Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...

They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...

I have been diagnosed with PNets grade 2 that metastasized to liver. The past few months I have been dealing with acites. Currently doctor is...

My partner has pancreatic NET, grade 2 stage 4 w metastases in liver - she is having first post diagnosis scan after 3 months lanreotide....

I was diagnosed late February 2025 by liver lesion biopsy with neuroendocrine grade 2, well differentiated. Ga68 Dotatate Pet scan end of March confirmed pancreas...

First scan after 4 lanreotide monthly shots for pancreatic net grade 2 stage 4 w liver (both lobes) metastases. Advice on understanding interval progression and...

Below are links with additional information.https://l.smartnews.com/p-15eSVMB/JS1UQ5Histotripsy treatment, FDA-approved therapy that kills cancer using sound and water, led by team at Providence Mission Hospital | abc7.comhttps://abc7.com/amp/post/histotripsy-treatment-fda-approved-therapy-kills-cancer-using-sound-water-led-team-providence-mission-hospital/15648669/Below...

I was recently diagnosed with multiple NETs. I believe I have 3 in my liver with the largest 4.6cm. My initial test showed a Chromogranin...

Hi everyone, I’m hoping to get some perspectives from others who have faced similar decisions around PRRT. I’m a 40-year-old male with a well-differentiated Grade...

What are the latest developments in Zanzalintinib (311) with LANREOTIDE ACETATE (4-week cycle) in treating pNET high grade 3 metastatic in liver for over 2...

has anyone used mayo clinic in Rochester Minnesota for carcinoid tumors. the diagnosis was carcinoid tumors in the liver. I am looking for the best...

I was dx with small bowel NET, met to the liver in 2018 (Carcinoid subset). Surgery removed the large primary tumor & some lymph nodes....

Hello I was diagonised with Neuron drone Tumor Cancer April 2024 from having a bowl obstruction surgery which was the tumor in the intestines that...

Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...

I am looking for anyone that has dealt with this diagnosis and received treatment. My husband was diagnosed July 2018 and we’ve had two reoccurrence...

Hiya. My partner is on her fourth monthly lanreotide & just had scans. They showed significant growth in liver despite the treatment ( grade 2,...