Neuroendocrine Tumors (NETs) Support Group

This is next procedure after my right Hemicolectomy

They believe they found the original NET in my lower ileum. The plan or removing that part of the small intestine, appendix, and part of...

I've been involved in the Mayo forum for a few years now, read a lot of great stories of improvement and life living with NET....

My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...

I was first diagnosed on July 11, 2024 with Siewert type 2 Gastroesophageal Adenocarcinoma. I had a pet scan in Sept of the same year...

Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...

My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...

Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...

Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in...

Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...

5 days ago I had y90 embolization to the liver for metastatic nonfunctional NET. Severe pain and vomiting after procedure. Had to be admitted for...

I had a Cat Scan 9/5 that first identified the cancer. Then I had an MRI 11/19/24 and then a Cat Scan 12/3/2024.I am wondering...

I was on everolimus in 2024 liver NETs did not shrink. Stopped in June 2025. Had Y 90 June 2025 treating right posterior lobe with...

PNET Grade 2 (K-67 3.2%) in tail of pancreas, both portal and splenic veins. No mets to liver or spleen. Just finished 3rd round of...

My precious wife of 39 years has grade 3 NET in her liver and pancreas (also in the ileum that was removed). She is receiving...

Been taking Cabozantinib for a year now, and have heard that it tends to lose effectiveness on cancer progression over time.Take it for stage IV...

I’m questioning if I should continue PRRT for NETs on my liver. I feel much worse after starting PRRT

Next week the Dr will map the artery to my liver and the following week they'll inject microbeads of radiation to directly target the Nets.

I live in Panama (a US citizen , now retired) and have been diagnosed with NETS after many tests and biopsy. I have had 5...

Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...