Neuroendocrine Tumors (NETs) Support Group

I've been involved in the Mayo forum for a few years now, read a lot of great stories of improvement and life living with NET....

My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...

Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...

My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...

I was first diagnosed on July 11, 2024 with Siewert type 2 Gastroesophageal Adenocarcinoma. I had a pet scan in Sept of the same year...

Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...

Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in...

Hi everyone, I’m hoping to get some perspectives from others who have faced similar decisions around PRRT. I’m a 40-year-old male with a well-differentiated Grade...

Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...

I had a Cat Scan 9/5 that first identified the cancer. Then I had an MRI 11/19/24 and then a Cat Scan 12/3/2024.I am wondering...

I'm 87 years old and was recently diagnosed with a well-differentiated grade 1 pancreatic neuro-endocrine tumor, with widespread hypermetabolic disease. My PET scan showed extensive...

Diagnosed in August 2025. Started Lanreotide injections in October. Pet Scan revealed a "Christmas tree". Tumors covering pancreas and liver. Non-functional and no further symptoms....

My precious wife of 39 years has grade 3 NET in her liver and pancreas (also in the ileum that was removed). She is receiving...

Just an update….I am 72 years old with stage 4 grade 2 neuroendocrine cancer (functional but no symptoms ). Primary in my small intestine with...

I’m questioning if I should continue PRRT for NETs on my liver. I feel much worse after starting PRRT

Pnets KI67 25%. My husband had 3 captems cycles. The last cycle had toxicity and became sick. Anyone experience Y90 procedure for Pnets mets to...

Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...

I am considering surgery for neuroendocrine tumors metastatic to the liver. I have about 6-7 tumors that are visible on MRI. One surgeon told me...

What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...

Small bowel Nets with Mets, Grade 2, stage 4. I just had my 6 month follow up scan & the news is great! I have...