Neuroendocrine Tumors (NETs) Support Group

NET, the TP crisis, a rant and a little humorI’m sure the irony of the TP “shortage” is not lost on most of us. As...

HelloMy father, mid 60's, non smoker, fit and healthy, underwent a lower left lobe lobectomy approx 1 month ago. He is recovering very well. The...

Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...

Was diagnosed with NET last year, have been getting Lanreotide injections every 28 days plus Everolimus medication everyday Dr stopped Everolimus in September because i...

I have recently been diagnosed with the Differentiated Adenocarcinoma with Neuroendocrine Differentiations in the Gallbladder, Liver, and parts of right and left Abdomen. I have...

I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...

I am interested in hearing people’s experiences with cabozantinib. I was diagnosed January 2020, grade 3, well-differentiated, unknown primary with tumors in liver, pancreas, lungs,...

What am I missing? I have been feeling sick for 7 months, basically life has stopped. They have done many many testings on me and...

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

I'm a 41 yr old male and for the last 16 months I have had almost daily flushing (face, ears, chest, upper back/shoulders) episodes along...

Good morning.I mentioned a while back that I was diagnosed with Malignant Neuroendocrine of the Lungs and have been undergoing Sandostatin LAR 30 mg/28 days...

Last week I woke up with a swollen arm and went to the ER as I was also very weak. I was diagnosed 9/24 with...