Neuroendocrine Tumors (NETs) Support Group

Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...

How much is too much? How does it effect Liver NET?

I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...

I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.

I have been told by several drs and read that it is important to have your images taken on the same machine for the quarterly,...

Looking to connect my sister with anyone with this rare cancer, as far as we know it originated in the liver. It's stage 4 and...

My husband has significant liver tumors. Almost 80% disease in liver. He is currently being treated in GA, but we live in south AL. He...

I have received different information about removing lymph nodes when a surgery is done to remove tumors in the liver. I have an unknow origin...

Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver

3 years ago, I had surgery to remove the duodenal NET diagnosed as grade 3 and poorly differentiated. After recovering from surgery, I had 6...

I have read that MRI's provide better imaging for liver. Wondering what three month follow up imaging people are having for metastatic liver neuroendocrine tumors.

I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...

I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...

We are looking for the best diet or food suggestions for after liver embolization. There is no nausea but still very weak. Monthly lanreotide shots...

I have metastatic neuroendocrine tumors in the liver with no known origin diagnosed in Sept 2024 grade 2 KI-67 6-8% well differentiated non functioning. Been...

Hello I am new to the site. My 74 y/o husband is diagnosed with stage 4 gastric carcinoid tumor transverse colon which was partially resected...

Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...

Has anyone had a large NET in the liver measuring 6 cm or more? What was the recommended treatment?

Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...

I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...