Neuroendocrine Tumors (NETs) Support Group

Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...

Hello I am new to the site. My 74 y/o husband is diagnosed with stage 4 gastric carcinoid tumor transverse colon which was partially resected...

Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...

Has anyone had a large NET in the liver measuring 6 cm or more? What was the recommended treatment?

I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...

I've been involved in the Mayo forum for a few years now, read a lot of great stories of improvement and life living with NET....

My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...

Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in...

Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...

My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...

Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...

I have stage IV cancer of ampulla of Vater, mets to liver. It is rare because it is small cell. Have had my regimen of...

Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...

Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...

Good Evening. I’ve been posting from time to time about my experience with diagnosing a liver lesion found in my right lobe. I’ve had all...

I had a Cat Scan 9/5 that first identified the cancer. Then I had an MRI 11/19/24 and then a Cat Scan 12/3/2024.I am wondering...

Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...

I have had non-alcoholic cirrhosis of the liver for 7 years. I’m doing really good but after a lung biopsy last week, I have also...

I would like to hear from anyone who has embolization of their liver for the purpose of stopping/slowing growth of a metastatic tumor there.

They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...