Neuroendocrine Tumors (NETs) Support Group

Hello, I’m 90 days post-diagnosis with a G1 (non-functional) pancreatic malignant neuroendocrine tumor (PNET) on my pancreas, measuring 1.3 cm (CT scan on 4/23 showed...

A 1.7 cm Pnet was found on tail of pancreas about 4 months ago as an incidental finding. Lots of scans and a Dototate 68...

Please help, my son went to ED thought gallbladder found PNET pancreatic cancer in tail and spleen 8 cm tumor also in 4 lymph nodes...

Hi ..i did distal pancréatectomy with splectomy since 2 years..it was Pnet grade 2 ..last year my MRI was clean..now since 2 week minimum i...

I had a very large PNET removed (14 CM) along with my spleen, adrenal gland and 21+ lymph nodes (4 were malignant the other ones...

Hello. I’m thinking this may have been discussed before. Sorry if I’m asking an old question Is everyone with a pNET on Creon. Pancreatic enzymes...

Good morning! Yesterday I had a meeting with my oncologist to discuss the data from my last CT scan. I have been moved from scans...

Just wondering the criteria for staging. My 1.6cm pNET was removed and discovered it spread to one lymph node. Very little of it was found...

I heard that many last stage cancer patients, who had stopped any kind of therapy were finally cured after adopting intermittent fasting and Keto.. do...

Hey all, my husband has recently been diagnosed with a 4.9 cm PNet gastrinoma grade 2 stage 4. After upper gi bleed , double pulmonary...

My partner is grade 2, stage 4 PNET diagnosed Jan 28 2025 and post start of lanreotide (3 months) showed growth still. Starting PRRT shortly....

My 29 son has a grade 3 PNET and Liver METS. He receives monthly Lanrotide which causes wild blood sugar highs and rapid lows. He...

Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...

I have a well defined NF 1.7cm PNET in the body and a 6mm tumor (not biospied) in the tail of the pancreas. PET scan...

I am currently preparing to begin Lutathera at Mayo in Jacksonville after showing progression while on Clinical trial CAM2029 octreotide. Fully terrorized as what to...

I’m an international student on student visa in Australia, 35 years old diagnosed of PNet.., my hospital won’t confirm my booking for planned surgery in...

I am new to this group and thankful for the insight offered by those who post their experiences. I am a 68 year old man...

Hi. Age 51. Diagnosed with Scleroderma, Lupus and Raynaud’s 20 yrs ago. Had a Bronchial Carcinoid removed in ‘07. A routine Gallo scan in ‘19...

Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...

Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...