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Public Support Group 222 total results
Discussions (37)
Small bowel NET and colon cancer
I am 51 and had my first colonoscopy. One polyp with cancer was discovered and removed. The standard practice it to conduct a CT scan...
Primary Small Bowel NETS, Liver Mets
I’ve included a photo of my liver Mets in case others are interested in what it actually looks like. Photo was taken by NETS surgeon...
Diagnosing small bowel NETs with carcinoid syndrome
I have 2 questions about diagnostic tests. 1. Is oral barium contrast safe with a suspected or possible partial small intestinal obstruction? I'm concerned the...
Neuroendocrine tumors in small bowel, omentum, on ovaries, appendix
caregiver for my 79 year old godmother who was diagnosed with neuro endocrine tumors today. She went in for bowel stricture to have a bowel...
Neuroendocrine tumor in small bowel with lymph nodes involved
Hello there, Anyone with small bowel carcinoma with lymph nodes involved? I was diagnosed with NETs of small bowel carcinoma stage 3, grade 1 on...
Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?
I was diagnosed in ‘21 (51 y/o) with SB net and metastatic tumor in the mesentery lymph nodes. All successfully resected. The metastasis in mesentery...
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
NETS Mesentery, Small Bowel Resection, Lanreotide, Octreotide, Story
Maybe my story helps somebody. I've had well differentiated Nets for a while now. A review early last year of a 2019 CT confirmed mesenteric...
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Hello All I just discovered this NETS support group and happy to be here. I am recently diagnosed with NETS in small bowel which was...
Good news on 6-month follow-up for Small bowel NET with mets
Small bowel Nets with Mets, Grade 2, stage 4. I just had my 6 month follow up scan & the news is great! I have...
NETs: Scheduled for small intestine resection: What to expect?
I was diagnosed with NET 2 weeks ago. I had symptoms of obstructed bowel which led to a CT scan showing a tumor in mesentery,...
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
NETs what to eat? What to avoid?
Hello sweeties As newly diagnosed, as we know we need to know everything about our cancer triggers and what makes us gain control of our...
Cough ! What could it be?!
I had Nets in small bowel. Got my surgery on November last year. Since then, am coughing a lot. I did the scan thought it...
determination of primary site of NET
My son, age 29, who has had very serious digestive problems (sigmoid volvulus resulting in left hemicolectomy, small bowel blockage, bowel perforation, strangulated abdominal hernia,...
Is anyone taking cabozantinib (Cabometyx)?
I was dx with small bowel NET, met to the liver in 2018 (Carcinoid subset). Surgery removed the large primary tumor & some lymph nodes....
What’s next: Seeking advice on how to navigate diagnosis appointments?
Hi there! I’ve been posting recently and Thank god I asked about the test and raised my concerns. Before Mayo, I’m flying to MD Anderson...
I recently had surgery to remove NET in small intestine
They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...
How can test be so different?
Hi, I hope all are feeling well. For the past yr I have been undergoing many tests. 24 hr Urine positive in small bowel, Gallium...
Small Intestine Resection
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
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