Neuroendocrine Tumors (NETs) Support Group

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Comments (298)

Hello @awu99 and welcome to Mayo Connect. I see that you are early in your diagnosis...

https://connect.mayoclinic.org/comment/1398190/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21 2:49pm

Hello @awu99 and welcome to the NETs group on Mayo Connect. I see that you have...

https://connect.mayoclinic.org/comment/1392784/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 10:11am

PNET, UTERINE FIBROIDS & BRAIN LESIONSCreated by a 38 year old with a very small PNET...

https://connect.mayoclinic.org/comment/920814/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 29, 2023

Hi @sturns, welcome to the NETs group. Is that a picture of you surfing? The abbreviation...

https://connect.mayoclinic.org/comment/717233/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Jun 13, 2022

@pavlina60 hope you are doing well.my sister diagnosis same PNET grade 3 .can you help what...

https://connect.mayoclinic.org/comment/1409617/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6 11:13am

Even with normal chromogranin Pnet can be found??

https://connect.mayoclinic.org/comment/1221557/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 3:45pm

@lindabees hi my sis hv stage 4 grade 3 PNET ,Liver modules.Captem doesn't work.did etopside and...

https://connect.mayoclinic.org/comment/1410555/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

Hello @perryleeoneal and welcome to the NETs support group on Mayo Connect. I appreciate you sharing...

https://connect.mayoclinic.org/comment/1312862/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 7:24pm

Hi @milagro45pr, I wanted to check in with you. You may be interested in this related...

https://connect.mayoclinic.org/comment/809306/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

For all who are interested in learning about a new treatment for pNET, here is a...

https://connect.mayoclinic.org/comment/1267856/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27 8:38am

I am so sorry to hear this. As you may well know, pancreatic cancer of the...

https://connect.mayoclinic.org/comment/1378567/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24 8:25pm

Hello @donnarushing55 and welcome to Mayo Connect. Yes, NETs are rare and as @tinerobison posted, getting...

https://connect.mayoclinic.org/comment/995977/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2024

Ive been a Pnet patient at Mayo in Jacksonville since December 2017.

https://connect.mayoclinic.org/comment/176685/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2018

Has anyone experienced pain in their hip or lower back from pNET? Anthony

https://connect.mayoclinic.org/comment/774168/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Nov 17, 2022

Hello @outlawcancer and welcome to Mayo Connect. I can certainly understand your feelings after having a...

https://connect.mayoclinic.org/comment/782568/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 8, 2022

@lindabees Wow. Thank you for the respond. 5 years ago I had mini Whipple(PNET). A month...

https://connect.mayoclinic.org/comment/1408178/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4 11:42am

Hello! I have similar diagnosis - pNET and liver metastases. Surgery for the pNET and debulking...

https://connect.mayoclinic.org/comment/1076200/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

May I know more about the reactions now? I am considering for the PNET tumor removal...

https://connect.mayoclinic.org/comment/1088198/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Waiting is some times the hardest part. Pnet is the acronym for pancreatic neuroendocrine tumors. Mine...

https://connect.mayoclinic.org/comment/917143/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

@mdethardt Welcome to Mayo Connect. I can't disagree with your logic. I have a pnet that...

https://connect.mayoclinic.org/comment/1356508/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 10:21pm

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