Neuroendocrine Tumors (NETs) Support Group

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Comments (102)

Hi @kbrown471, welcome. There are several members talking about merkel cell carcinoma in this group. Here...

https://connect.mayoclinic.org/comment/1174978/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2024

Hello @penlandtr1 and welcome to Mayo Connect. I see that you are interested in connecting with...

https://connect.mayoclinic.org/comment/986907/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Dec 26, 2023

Is this type of cancer considered Merkel cell carcinoma as well? I was reading about Merkel...

https://connect.mayoclinic.org/comment/1172427/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2024

Welcome @maryluph1953, I moved your post about Merkel Cell Carcinoma to this related discussion: - Merkel...

https://connect.mayoclinic.org/comment/1155591/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 11, 2024

Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...

https://connect.mayoclinic.org/comment/1172492/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2024

@donnapeck51, as @californiazebra mentioned there are merkel cell discussions you might like to join. Here is...

https://connect.mayoclinic.org/comment/1177083/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2024

Welcome, @mrsdit. Indeed. To help you meet other members living with merkel cell carcinoma, I moved...

https://connect.mayoclinic.org/comment/1073748/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 24, 2024

Hello @rose830 and welcome to Mayo Clinic Connect. As @californiazebra said, I also had to look...

https://connect.mayoclinic.org/comment/844421/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

Would appreciate anything on Merkel Cell Carcinoma?

https://connect.mayoclinic.org/comment/1155556/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 11, 2024

Well I got my news early and the 2 cm spot on my liver is indeed...

https://connect.mayoclinic.org/comment/783362/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

@donnapeck51 I just did a search for Merkel cell on this Mayo patient site and there...

https://connect.mayoclinic.org/comment/1172495/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2024

Are there any other people here dealing with Merkel cell carcinoma?

https://connect.mayoclinic.org/comment/1073694/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 24, 2024

Hi Thanks for your reply. I will check out merkel cell.org.

https://connect.mayoclinic.org/comment/765995/

Discussion: Merkel Cell Carcinoma: Immunotherapy while on antirejection meds

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2022

A dear friend of mine was diagnosed with Merkel. He had it on his leg, a...

https://connect.mayoclinic.org/comment/1066648/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 12, 2024

@kate777, I'm sorry to hear that your worry was confirmed at Merkel cell carcinoma. Immunotherapy is...

https://connect.mayoclinic.org/comment/783554/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2022

Hello Lucky Man! I was very happy to read your post regarding Merkel. I am an...

https://connect.mayoclinic.org/comment/962945/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Nov 11, 2023

@lynnemerk1, welcome. I moved your post about being newly diagnosed with merkel cell carcinoma to this...

https://connect.mayoclinic.org/comment/1107547/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 18, 2024

Helpful suggestions, @buildertom. When were you diagnosed with merkel cell carcinoma? How are you doing now?

https://connect.mayoclinic.org/comment/1112864/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jul 27, 2024

My husband was diagnosed with stage 3B merkel cell on his nose .....they removed it in...

https://connect.mayoclinic.org/comment/1082712/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jun 7, 2024

Thinking of getting a second opinion since merkel is so rare. Doing some research on the...

https://connect.mayoclinic.org/comment/1157929/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 16, 2024

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