Neuroendocrine Tumors (NETs): Discussions

I have metastatic liver cancer I have been told MRI is the best scan for the...

https://connect.mayoclinic.org/comment/1207344/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 7:34am

liver and stomach

https://connect.mayoclinic.org/comment/1251267/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 5:21pm

Thanks. I am searching for options for me. Recent MRI detected a tumor in the liver...

https://connect.mayoclinic.org/comment/1251741/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Mar 6 11:12am

Hello @amygirl, The question about fatty liver and NETs is something that your doctor could best...

https://connect.mayoclinic.org/comment/1197875/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

@tomrennie How big were your tumors? On liver? TYou

https://connect.mayoclinic.org/comment/1251244/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 4:47pm

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET...

https://connect.mayoclinic.org/comment/922667/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

@links, do you have inflammation of the liver capsule? Or is it the tumor stretching the...

https://connect.mayoclinic.org/comment/967684/

Discussion: Anyone have stretching of the liver capsule?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

I have been stage 4 since the beginning primarily to the liver. It likes to play...

https://connect.mayoclinic.org/comment/1274239/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: 17 hours ago

Thank you. I’m curious if you had surgery to remove the liver Mets and the primary...

https://connect.mayoclinic.org/comment/1232879/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 10:16am

I had surgery five years ago for nets in my small intestine which had spread into...

https://connect.mayoclinic.org/comment/217318/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Yes, my fatty liver disease has gotten severe in the past year (as shown by my...

https://connect.mayoclinic.org/comment/1199891/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

I was diagnosed with stage 3 atypical carcinoid in dec of 2023. Ki-67 number was 5....

https://connect.mayoclinic.org/comment/1266745/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:39pm

Hello Teresa, Curious to know what surgeries you had? Any involving the liver or pancreas?

https://connect.mayoclinic.org/comment/1262523/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 9:15am

Well we were surprised at the transplant option, our assumption was we get the NET to...

https://connect.mayoclinic.org/comment/994290/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

yes was found in routine blood work with liver values off further testing revealed tumors in...

https://connect.mayoclinic.org/comment/671990/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2022

You are welcome. My blood work up, which they do every month, shows liver and kidney...

https://connect.mayoclinic.org/comment/1218718/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 8:12am

Oh so sorry for the bad stuff following embolization. Not sure if it is helpful but...

https://connect.mayoclinic.org/comment/828461/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

MRI for my liver mets

https://connect.mayoclinic.org/comment/1207367/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 7:55am

Hi Renee, I am also in the same frustrating situation as have gone for CT scan,...

https://connect.mayoclinic.org/comment/1265384/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 6:13am

We have a number of members in the NET support group who have discussed their experiences...

https://connect.mayoclinic.org/comment/1146709/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

Neuroendocrine Tumors (NETs) Support Group