Neuroendocrine Tumors (NETs) Support Group

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Comments (1,940)

I have not had a liver transplant but was diagnosed with NETS this April and I...

https://connect.mayoclinic.org/comment/1330014/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 2:56pm

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14 8:48pm

Is the Joe Tippens protocol for neuroendocrine cancer? It looked like it was for pancreatic cancer.....

https://connect.mayoclinic.org/comment/1289433/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 8:25am

Multiple liver nodules, 10-14 I believe so NETS surgeon removed a triangle section of liver.

https://connect.mayoclinic.org/comment/1301391/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10 6:37pm

I have metastatic liver cancer I have been told MRI is the best scan for the...

https://connect.mayoclinic.org/comment/1207344/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 7:34am

My journey since diagnosis of pets, metastasis to liver, Jan.2025 has been monthly Lanreotide, now every...

https://connect.mayoclinic.org/comment/1329038/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 10:13am

Don’t remember the grade in our case, but my wife had stage 4. She had primary...

https://connect.mayoclinic.org/comment/1344908/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

My Journey of what I have done Liver resection Lanreotide Octreotide Liver embolizations both sides Afinitor...

https://connect.mayoclinic.org/comment/1328140/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 6:49am

Hello @amygirl, The question about fatty liver and NETs is something that your doctor could best...

https://connect.mayoclinic.org/comment/1197875/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

You could ask for an MRI of the liver if it continues. MRIs are commonly used...

https://connect.mayoclinic.org/comment/1308851/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 4:45pm

I also developed spinal tumors while being stable in the liver

https://connect.mayoclinic.org/comment/1337835/

Discussion: Liver and Pancreas Stable

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29 1:19pm

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET...

https://connect.mayoclinic.org/comment/922667/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

@links, do you have inflammation of the liver capsule? Or is it the tumor stretching the...

https://connect.mayoclinic.org/comment/967684/

Discussion: Anyone have stretching of the liver capsule?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

I had encroachment in my portal vein and smv when originally diagnosed with my pnet in...

https://connect.mayoclinic.org/comment/1326437/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13 12:34pm

My pancreatic cancer has metastsized to the liver and I have started chemo Rx. If the...

https://connect.mayoclinic.org/comment/1307883/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 19 2:13pm

@mn86az, as @lindabees posted, there are several treatment possibilities for liver cancer and liver metastasis. Did...

https://connect.mayoclinic.org/comment/1299888/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8 1:43pm

I had surgery five years ago for nets in my small intestine which had spread into...

https://connect.mayoclinic.org/comment/217318/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Yes, my fatty liver disease has gotten severe in the past year (as shown by my...

https://connect.mayoclinic.org/comment/1199891/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

It seems to be! That’s what I had I have similar type pancreatic primary metatastic to...

https://connect.mayoclinic.org/comment/1326387/

Discussion: Captem

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13 11:23am

Well we were surprised at the transplant option, our assumption was we get the NET to...

https://connect.mayoclinic.org/comment/994290/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

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