Neuroendocrine Tumors (NETs) Support Group

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Comments (2,499)

My 59 yr old husband was diagnosed with stage IVb large cell NEC, many masses in...

https://connect.mayoclinic.org/comment/1598540/

Discussion: Neuroendocrine tumor (NET) vs neuroendocrine carcinoma (NEC)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15 9:43am

Yes, some people with liver metastases from pancreatic NETs do experience intense itching, especially if the...

https://connect.mayoclinic.org/comment/1614609/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

@espelandmt2 PRRT = Liver NETs tteatment?

https://connect.mayoclinic.org/comment/1612853/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

Yes, Y-90 to treat tumors on the liver.

https://connect.mayoclinic.org/comment/1616832/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

If the itching is caused by liver dysfunction or cholestasis (reduced bile flow) from liver metastases,...

https://connect.mayoclinic.org/comment/1615428/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

@christobelle89 How long ago was your surgery and what did they do for your liver.

https://connect.mayoclinic.org/comment/1615712/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

@greenmountainzebra I just did a quick search of discussions on Connect. I could not find any...

https://connect.mayoclinic.org/comment/1610386/

Discussion: Laproscopic Liver Ablation

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1 9:44am

Hi all, I’m glad I found this thread.. my husband was recently diagnosed with a 15cm...

https://connect.mayoclinic.org/comment/1601979/

Discussion: Anyone deal with severe pain after Y90 treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 8:47pm

@billbo I also had severe itching with liver mets that greatly decreased with treatment.

https://connect.mayoclinic.org/comment/1616353/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

@christobelle89. I have a question on how the mets have metastasized to the liver after the...

https://connect.mayoclinic.org/comment/1608837/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29 9:13am

Hello @mamajeanne and welcome to Mayo Connect. I am glad that you found this forum, as...

https://connect.mayoclinic.org/comment/1568535/

Discussion: New to the group and cancer journey: Liver NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6 9:06pm

Not really. Have very good oncologist, liver specialist and radiologist all working on it. Thankfully here...

https://connect.mayoclinic.org/comment/1616901/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

@marni999 I too have a PNET that spread to my liver and bones. Do you take...

https://connect.mayoclinic.org/comment/1614949/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

@billbo Are you having Y-90? Forgive my memory, but you have PNETs that spread to your...

https://connect.mayoclinic.org/comment/1616801/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

@tomrennie Thx so much for the info. I'm not at the chemo level yet but they...

https://connect.mayoclinic.org/comment/1616797/

Discussion: Itch with liver pNets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

My husband had it done in 2013. 50% of his liver was covered in tumors and...

https://connect.mayoclinic.org/comment/1614685/

Discussion: Radioembolization for liver tumors fromNETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

I just had my #40 Lanreotide. Pancreatic NET with liver mets. Distal pancreatectomy, splenectomy, cholecystectomy, partial...

https://connect.mayoclinic.org/comment/1594270/

Discussion: Octreotide or Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9 10:28am

@tomrennie my liver specialist thinks the radioembolization of my liver will help deal with the itch?...

https://connect.mayoclinic.org/comment/1549588/

Discussion: Severe itching from liver metastasis (NETs)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13 10:47am

I am scheduled for MRI guided liver ablation at Stanford Hospital on 7/15 for two small...

https://connect.mayoclinic.org/comment/1612297/

Discussion: Laproscopic Liver Ablation

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4 2:27am

@tomrennie Thanks for your response. Yes, they prescribed Zofran which is a great help but can...

https://connect.mayoclinic.org/comment/1602428/

Discussion: Anyone deal with severe pain after Y90 treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20 12:37pm

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