Neuroendocrine Tumors (NETs): Discussions

Hi @solaviera. Welcome to Mayo Connect. Sometimes fatty liver just happens. I pulled this from Mayo's...

https://connect.mayoclinic.org/comment/1376785/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22 1:27pm

I've tried hydroxyzine for months and also benadryl. Only cold helps. Liver specialist says paraneoplastic effect...

https://connect.mayoclinic.org/comment/1383695/

Discussion: Carcinoid syndrome symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31 5:53pm

The liver specialist wants to do 1 more bland embolization on another lobe of my liver...

https://connect.mayoclinic.org/comment/1387998/

Discussion: Why do almost none of the sites online mention severe itching?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6 11:44am

Yes; fatty liver showed up on scans/labs following cytoreductive/debulking surgery for GI mets & now on...

https://connect.mayoclinic.org/comment/1377451/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 23 12:03pm

I have not had a liver transplant but was diagnosed with NETS this April and I...

https://connect.mayoclinic.org/comment/1330014/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 2:56pm

I have metastatic liver cancer I have been told MRI is the best scan for the...

https://connect.mayoclinic.org/comment/1207344/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 7:34am

Yes, I have had a significant increase in fatty liver over the course of a year...

https://connect.mayoclinic.org/comment/1376841/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22 2:31pm

Hello @amygirl, The question about fatty liver and NETs is something that your doctor could best...

https://connect.mayoclinic.org/comment/1197875/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

In my wife's case, we did the surgery first, removed primary from lower pancreas, removed spleen,...

https://connect.mayoclinic.org/comment/1366405/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8 11:42am

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14 8:48pm

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET...

https://connect.mayoclinic.org/comment/922667/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

@links, do you have inflammation of the liver capsule? Or is it the tumor stretching the...

https://connect.mayoclinic.org/comment/967684/

Discussion: Anyone have stretching of the liver capsule?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

Is the Joe Tippens protocol for neuroendocrine cancer? It looked like it was for pancreatic cancer.....

https://connect.mayoclinic.org/comment/1289433/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 8:25am

Multiple liver nodules, 10-14 I believe so NETS surgeon removed a triangle section of liver.

https://connect.mayoclinic.org/comment/1301391/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10 6:37pm

Surgery was done at Trinity Hospital in Ann Arbor Mich, not at Mayo. All my treatment...

https://connect.mayoclinic.org/comment/1380479/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27 11:24am

Yes, my fatty liver disease has gotten severe in the past year (as shown by my...

https://connect.mayoclinic.org/comment/1199891/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

I had surgery five years ago for nets in my small intestine which had spread into...

https://connect.mayoclinic.org/comment/217318/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Well we were surprised at the transplant option, our assumption was we get the NET to...

https://connect.mayoclinic.org/comment/994290/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

Hi there, I'm new here. Doctors diagnosed me with a neuroendocrine tumor in the terminal ileum...

https://connect.mayoclinic.org/comment/1376327/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21 9:42pm

I just had a PET scan Wednesday and in the test results I was also diagnosed...

https://connect.mayoclinic.org/comment/1376470/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22 7:44am

Neuroendocrine Tumors (NETs) Support Group