Neuroendocrine Tumors (NETs) Support Group

@tomrennie This was my F-18 FDG PET Scan findings: Mediastinal blood pool SUVmax 1.7 Background liver...

https://connect.mayoclinic.org/comment/1630476/

Discussion: Small Bowel Cancer Diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 6:47am

@rdiaz1998 Stable and disappeared are good words to describe liver mets. Congrats to you!

https://connect.mayoclinic.org/comment/1636995/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3 7:08pm

@dadcue Elevated AST and ALT can be caused by fatty liver disease. They don't mean that...

https://connect.mayoclinic.org/comment/1625078/

Discussion: Stage 4 ileal neuroendocrine tumor and stage 3 chirosis of the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 8:31am

I had my right lung removed in 23 and they surveilled my chest with CT for...

https://connect.mayoclinic.org/comment/1639733/

Discussion: What tests should be part of a surveillance protocol for lung NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7 10:46am

Has anyone experienced intense bouts of overall body itch as result of liver malfunctioning due to...

https://connect.mayoclinic.org/comment/1614231/

Discussion: Anyone experienced intense itch with pNETs mets to the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6 3:48pm

@memamary Hi and welcome to Mayo Connect. Sorry to hear about your post Whipple liver lesions....

https://connect.mayoclinic.org/comment/1633828/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30 5:37pm

I just had my #40 Lanreotide. Pancreatic NET with liver mets. Distal pancreatectomy, splenectomy, cholecystectomy, partial...

https://connect.mayoclinic.org/comment/1594270/

Discussion: Octreotide or Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9 10:28am

Had Y90 radiated beads some 7 weeks ago for 2” diameter liver cancer, had no side...

https://connect.mayoclinic.org/comment/1636269/

Discussion: Y90 and Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2 8:28pm

My 59 yr old husband was diagnosed with stage IVb large cell NEC, many masses in...

https://connect.mayoclinic.org/comment/1598540/

Discussion: Neuroendocrine tumor (NET) vs neuroendocrine carcinoma (NEC)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15 9:43am

@tomrennie Thanks. The doctor said we stop taking cabozantinib and probably start on CAPTEM. He is...

https://connect.mayoclinic.org/comment/1632869/

Discussion: Has cabozantinib (Cabometyx) stopped working for anyone?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29 2:55pm

Yes, some people with liver metastases from pancreatic NETs do experience intense itching, especially if the...

https://connect.mayoclinic.org/comment/1614609/

Discussion: Anyone experienced intense itch with pNETs mets to the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7 7:54am

@espelandmt2 PRRT = Liver NETs tteatment?

https://connect.mayoclinic.org/comment/1612853/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4 6:19pm

I have metastatic liver cancer I have been told MRI is the best scan for the...

https://connect.mayoclinic.org/comment/1207344/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Yes, Y-90 to treat tumors on the liver.

https://connect.mayoclinic.org/comment/1616832/

Discussion: Anyone experienced intense itch with pNETs mets to the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9 7:42pm

Good luck and may God be with you. I have Pan NET with liver involvement. Post...

https://connect.mayoclinic.org/comment/1648708/

Discussion: First Appt with Surgeon Oncologist for SB NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Hi @solaviera. Welcome to Mayo Connect. Sometimes fatty liver just happens. I pulled this from Mayo's...

https://connect.mayoclinic.org/comment/1376785/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

Hello @amygirl, The question about fatty liver and NETs is something that your doctor could best...

https://connect.mayoclinic.org/comment/1197875/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

If the itching is caused by liver dysfunction or cholestasis (reduced bile flow) from liver metastases,...

https://connect.mayoclinic.org/comment/1615428/

Discussion: Anyone experienced intense itch with pNETs mets to the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8 7:43am

@californiazebra thank you GI. This is for liver mets that have progressed.

https://connect.mayoclinic.org/comment/1594743/

Discussion: What side effects did you experience with Octreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 4:14am

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2025