Neuroendocrine Tumors (NETs): Discussions

Is your Oncologist team checking your ChromograninA with monthly blood tests? What are those result numbers?

https://connect.mayoclinic.org/comment/922661/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

Hello @cinephile10 and welcome to Mayo Connect. I see that @dbamos1945 has responded to your post...

https://connect.mayoclinic.org/comment/1461292/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15 8:07am

@cinephile10: ChromograninA results can vary and 1350 is certainly questionable. I have heard this test result...

https://connect.mayoclinic.org/comment/1460872/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 14 2:44pm

Sanjaykumar1: I have broached the subject of how patients can evaluate what the RISE or FALL...

https://connect.mayoclinic.org/comment/796364/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

My husband did great with the PRRT 4 treatments. He never had any scans orMRI to...

https://connect.mayoclinic.org/comment/1048898/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

@rkklinger Thank you for your reply. My cancer is similar in that I first had a...

https://connect.mayoclinic.org/comment/1450639/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1 8:55am

Hi Samotuline Depot is actually Lanreotide, so it is probably not a substitution. Regarding serotonin in...

https://connect.mayoclinic.org/comment/1462076/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16 11:03am

Hello everybody, I hope you are all doing well. I'm quite worried for my mom (she...

https://connect.mayoclinic.org/comment/1460768/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 14 1:02pm

I would ask for a blood serum serotonin test; brain serotonin & NETS serotonin are released...

https://connect.mayoclinic.org/comment/1462170/

Discussion: Is the excess hormones the cause of uncontrollable crying at times?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16 1:08pm

Getting ready for my first PRRT treatment in August for stage IV primary gastric tumor with...

https://connect.mayoclinic.org/comment/1358080/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 5:34am

A high chromogranin A can mean a lot of things. It can be high because of...

https://connect.mayoclinic.org/comment/1260836/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 6:17am

husband has been getting lenreotide every 28 days for 2 years. doesn't like the injection tho...

https://connect.mayoclinic.org/comment/1199704/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

That will definitely have an impact on the chromogranin test results. Because of that, many net...

https://connect.mayoclinic.org/comment/1331954/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 11:05am

I took a deep breath and asked for a second opinion when the 2022 results of...

https://connect.mayoclinic.org/comment/1185590/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2024

I mand hopes et with an oncologist yesterday. My report: Small tumors in pelvic/abdominal region and...

https://connect.mayoclinic.org/comment/812958/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

Hello @kellysg and welcome to the NETs discussion group on Mayo Clinic Connect. I appreciate your...

https://connect.mayoclinic.org/comment/809280/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

My husband has had high chromagranin A for years. They think from neuroendocrine cancer but have...

https://connect.mayoclinic.org/comment/802160/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

@terlato I was also diagnosed with POTS my recent emergency laparoscopy showed intestines adhesions and more...

https://connect.mayoclinic.org/comment/797793/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Many thanks for your concise response - I am posting on behalf of my wife Sharon:...

https://connect.mayoclinic.org/comment/792326/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...

https://connect.mayoclinic.org/comment/782928/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Neuroendocrine Tumors (NETs) Support Group