Neuroendocrine Tumors (NETs): Discussions | Page 9

Diagnosed with NELM 2017 with unknown primary, well differentiated grade 2 in liver and abdominal area....

https://connect.mayoclinic.org/comment/998435/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 12:19pm

A convincing announcement and animation of Histotripsy and liver cancer at the Univ of Chigo online....

https://connect.mayoclinic.org/comment/1023927/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27 6:13pm

Hello @maryluph1953 I see that you are in the process of treatment for Merkel Cell Carcinoma...

https://connect.mayoclinic.org/comment/1155843/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12 11:09am

Sorry to read about your circumstance. My NET is a Insulinoma, pancreas to liver, also too...

https://connect.mayoclinic.org/comment/874444/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

They suspect my brother may have some but haven't done anything for them yet, as I...

https://connect.mayoclinic.org/comment/877312/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

How old is your wife? I'm 55yr old Male and I had a SI resection, primary...

https://connect.mayoclinic.org/comment/994044/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 7:11pm

I had a very small carcinoid tumor removed in 2015 on my first colonoscopy that was...

https://connect.mayoclinic.org/comment/1146694/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24 1:44pm

Hi, PNet is one that starts in the pancreas then spreads to other parts like the...

https://connect.mayoclinic.org/comment/1071577/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 10:39am

Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now...

https://connect.mayoclinic.org/comment/1038499/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 5:21pm

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small...

https://connect.mayoclinic.org/comment/163994/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

Had appts at Mayo this week and CT scan shows growth in multiple liver tumors. Switching...

https://connect.mayoclinic.org/comment/771583/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2022

Husband was diagnosed in Nov. of last year with low grade neuroendocrine carcinoma which started at...

https://connect.mayoclinic.org/comment/941333/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Have worsening symptoms for close to 20 years but much progression since Sep 21 with multiple...

https://connect.mayoclinic.org/comment/748820/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

My embolization was January 12, 2023 It took me about a month to truly recover After...

https://connect.mayoclinic.org/comment/829069/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Thanks for the update. It is helpful to know how things evolve. So tumors were identified...

https://connect.mayoclinic.org/comment/1171377/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10 5:44pm

My Journey of doctors and second opinions - Local Community PCP ordered Ultrasound because of Liver...

https://connect.mayoclinic.org/comment/842699/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Hello @carm1011 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/890939/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2023

Hello @dbamos1945 I just noticed that @caitrina's post is in the liver debulking group, however, she...

https://connect.mayoclinic.org/comment/780507/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

It was a ' combined' pancreatectomy ( with spleen and gallbladder removal), liver debulking AND hysterectomy...

https://connect.mayoclinic.org/comment/847119/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

I was diagnosed with NETS WITH METASTASIS to my liver. I had a transplant. It was...

https://connect.mayoclinic.org/comment/949270/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

Neuroendocrine Tumors (NETs) Support Group