Neuroendocrine Tumors (NETs): Discussions | Page 9

@nana120, I love your new profile picture - your Halloween zebra costume is perfect. In addition...

https://connect.mayoclinic.org/comment/1179425/

Discussion: Radioembolization Is My Next Step

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

I'm so lost and scared! I have taken a PET scan and an MRI. It's suspicious...

https://connect.mayoclinic.org/comment/1394166/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

I too have a lot of itching and as weird as it sounds my ears itch...

https://connect.mayoclinic.org/comment/1386144/

Discussion: Why do almost none of the sites online mention severe itching?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3 9:38pm

Thank you I have an appointment today with my liver surgeon Hopefully I will know more

https://connect.mayoclinic.org/comment/934187/

Discussion: Bland Liver Embolization complication

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Vein issue explained - but ongoing growth of liver tumor(s) means have to try new approach

https://connect.mayoclinic.org/comment/1328757/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 9:52pm

Sorry I have been diagnosed with metastasized liver NETs don’t know where the primary is as...

https://connect.mayoclinic.org/comment/727433/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

Hello from Indiana. I was diagnosed in August with a NET in my intestine. Pet scan...

https://connect.mayoclinic.org/comment/763826/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2022

Hi Billyfeet, I was diagnosed in 2012 with a NET on the head of the pancreas...

https://connect.mayoclinic.org/comment/842404/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

UPDATE... NET specialist says I'm lucky. And rare as my SBNETs does not seem to have...

https://connect.mayoclinic.org/comment/1224979/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29 7:08pm

Hi Joy, each case of NET is different. I can share our case to give you...

https://connect.mayoclinic.org/comment/952987/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hi Neuroendocrine Group, I am Neuroendocrine Breast Cancer (rare) with mets in liver and bones. It...

https://connect.mayoclinic.org/comment/766898/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

I have been having the monthly injections of Octreatide. (Sp?) for about a year. It also...

https://connect.mayoclinic.org/comment/1303282/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 11:16am

Thank you for your encouragement. The exhaustion comes & goes. The primary is a carcinoid, very...

https://connect.mayoclinic.org/comment/977617/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

I'm sorry you have to through this. CT is a common imaging test. But MRI is...

https://connect.mayoclinic.org/comment/1350256/

Discussion: Has anyone had a CT Triple Phase Liver test after the removal of Net.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 10:53am

Hello @dbamos1945, I understand that you are looking to connect with others who have had NET...

https://connect.mayoclinic.org/comment/775970/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

I was diagnosed with a 2 cm grade 2 with Ki67 4% in the terminal ileum....

https://connect.mayoclinic.org/comment/1365552/

Discussion: 14 CM PNET w/ one year post resection. When will I see reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7 9:11am

Hi, breck from Iowa! I’m from Florida, have NETS in my liver and small intestine.. Welcome!

https://connect.mayoclinic.org/comment/1169290/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Sol, fatty liver seems to be a common problem. I apparently have it as well. I...

https://connect.mayoclinic.org/comment/1376449/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22 7:14am

How was his liver debulking surgery? How long ago was it? What grade is he and...

https://connect.mayoclinic.org/comment/898937/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

He’s done blood work and says it’s okay even though liver enzymes are high and WBC...

https://connect.mayoclinic.org/comment/728985/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2022

Neuroendocrine Tumors (NETs) Support Group