Neuroendocrine Tumors (NETs) Support Group | Page 9

I also developed spinal tumors while being stable in the liver

https://connect.mayoclinic.org/comment/1337835/

Discussion: Liver and Pancreas Stable

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2025

Yes, breast cancer that has metastasized to the liver. But has those mutations.

https://connect.mayoclinic.org/comment/600679/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2021

Hi, I’m new to post and fairly new to be diagnosed. In October 2025 I went...

https://connect.mayoclinic.org/comment/1552699/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 9:57am

@sophiarose, I'm sorry to read of your treatment complications. I'm tagging fellow NETs members @trivia @jhilbish...

https://connect.mayoclinic.org/comment/906085/

Discussion: Bland Liver Embolization complication

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2023

I’m very sorry to hear but glad the surgeon says are options. If You don’t mind...

https://connect.mayoclinic.org/comment/763130/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 19, 2022

@donnapeck51, as @californiazebra mentioned there are merkel cell discussions you might like to join. Here is...

https://connect.mayoclinic.org/comment/1177083/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2024

Hi @donnarushing55 He had a distal pancreatectomy in 2008 during which they discovered the many liver...

https://connect.mayoclinic.org/comment/1003991/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

I had encroachment in my portal vein and smv when originally diagnosed with my pnet in...

https://connect.mayoclinic.org/comment/1326437/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

First, is this a neuroendocrine cancer? I had neuroendocrine cancer on the tail of my pancreas....

https://connect.mayoclinic.org/comment/1608783/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29 8:32am

@kathyfujii Sorry for the unexpected news. I can relate to the liver metastasis. Having it has...

https://connect.mayoclinic.org/comment/1587848/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31 6:34pm

@hopeful33250 I had a neuroendocrine on the tail of the pancreas removed in 2017. A yearly...

https://connect.mayoclinic.org/comment/1606291/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25 4:34pm

@frankwc I don't recall the exact reason why PRRT wasn't recommended for me. There was something...

https://connect.mayoclinic.org/comment/1597877/

Discussion: Complicated NET Surgery Needed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 14 1:10pm

How did the proton go? I am having that for liver cancer

https://connect.mayoclinic.org/comment/232758/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 9, 2018

I had great success with it! Worked for me. A cluster of tumors in liver.

https://connect.mayoclinic.org/comment/1540112/

Discussion: Has anyone had Y90 treatment for NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 7:15am

I've been told MRI with contrast is best way to detect liver matastasis. With PET/CT there...

https://connect.mayoclinic.org/comment/805340/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

Call Atlanta Liver and Pancreas surgical specialists and ask to see Dr Sur.

https://connect.mayoclinic.org/comment/1531865/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 7:24am

The treatment plan that was discussed with me in 2018 for my NETs was Whipple surgery,...

https://connect.mayoclinic.org/comment/898267/

Discussion: NET's and possible liver transplant discussion

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

@jespi It seems to me the interventional radiologist should be able to explain any side effects!...

https://connect.mayoclinic.org/comment/1422048/

Discussion: Anyone deal with severe pain after Y90 treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2025

I have been stage 4 since the beginning primarily to the liver. It likes to play...

https://connect.mayoclinic.org/comment/1274239/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2025