Neuroendocrine Tumors (NETs): Discussions | Page 1

@splendrous, I hope you saw the helpful post from @jlsgt. Sometimes the original source, also known...

https://connect.mayoclinic.org/comment/1161138/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Hello...I am a new member here and I am scared. And was recently diagnosed with neuroendocrine...

https://connect.mayoclinic.org/comment/818982/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

In my case: I was told that the NET in small bowel (near duodenum) metastasized to...

https://connect.mayoclinic.org/comment/1241121/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20 12:03am

@marct First of all, I can only tell our story which is very similar. My wife...

https://connect.mayoclinic.org/comment/992359/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

Hello Karen, @immmm Understanding the difference between lesions, cystic lesions, liver metastasis and tumors can be...

https://connect.mayoclinic.org/comment/167649/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

Thank you everyone for your support I will be getting the liver embolization tomorrow I opted...

https://connect.mayoclinic.org/comment/795493/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Hello @pete1962 and welcome to the NETs discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814506/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Hi mssewest. No they didn't remover anything from my liver. They use a catheter in the...

https://connect.mayoclinic.org/comment/664862/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2021

I have stage 4 NET pancreatitis to liver cancer. Also had trouble with sugar levels dropping...

https://connect.mayoclinic.org/comment/934290/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Interesting. I too am at Mayo JAX. I wonder why you are being treated for your...

https://connect.mayoclinic.org/comment/831958/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

I also have NET’s in my liver, I am on monthly octreotide injections. I have not...

https://connect.mayoclinic.org/comment/883630/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Hi @ahtaylor Good to hear that your liver panels have been normal, that seems to be...

https://connect.mayoclinic.org/comment/829501/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of...

https://connect.mayoclinic.org/comment/292371/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2020

I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis....

https://connect.mayoclinic.org/comment/698009/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

I had robotic assisted liver debunking 9/6/22. Doctor said would help with the hormones being produced...

https://connect.mayoclinic.org/comment/789486/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2022

Thank you for your response and treatment info. It seems a good thing that you have...

https://connect.mayoclinic.org/comment/814505/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Here is another post about it. - Has anyone out there tried Histotripsy for tumors in...

https://connect.mayoclinic.org/comment/1192134/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2024

Wow hats off to you on your journey what an experience you learned from and handled...

https://connect.mayoclinic.org/comment/821372/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

I just read this comment. Did you ever get surgery for additional Mets in your liver?...

https://connect.mayoclinic.org/comment/1198871/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Dec 28, 2024

Neuroendocrine Tumors (NETs) Support Group