Neuroendocrine Tumors (NETs) Support Group

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Welcome to Connect: I was diagnosed with Non Small Cell Adnocarcinoma 11 year ago with a...

https://connect.mayoclinic.org/comment/134278/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2018

For anyone in the S. CA area, I had my DOTATATE PET Scan at UCLA in...

https://connect.mayoclinic.org/comment/835350/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...

https://connect.mayoclinic.org/comment/1067425/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...

https://connect.mayoclinic.org/comment/1227266/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...

https://connect.mayoclinic.org/comment/1181823/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

I did 5 rounds of sbrt for a lung carcinoid. It went very well and destroyed...

https://connect.mayoclinic.org/comment/1025801/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

I had left lower lobe removed had bad coughing to point of fracturing a lung cough...

https://connect.mayoclinic.org/comment/1066999/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

Neutoendocrine dyptic tumor on the outside of your lung? I have not heard.of that type. My...

https://connect.mayoclinic.org/comment/1065154/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

I am new to this forum. Have 2 carcinoid tumors in left lung that are inoperable....

https://connect.mayoclinic.org/comment/831583/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

@tomrennie lung nurse told me I don't need to worry about the half they removed in...

https://connect.mayoclinic.org/comment/1454821/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2025

@tomrennie my Oncologist went over my most recent PET scan with me. The nodes are still...

https://connect.mayoclinic.org/comment/1491384/

Discussion: Anyone having severe dizziness or lightheadedness with NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26 6:31pm

@jessie1990 I love your fur babies! So cute!!! As for pain, if it’s anything new I...

https://connect.mayoclinic.org/comment/1435491/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2025

I am still relatively new to this whole journey. I am curious what “type” of cancer...

https://connect.mayoclinic.org/comment/816816/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2023

Yes. I was diagnosed with tumours on my lung 7 years ago. They were watching them...

https://connect.mayoclinic.org/comment/899066/

Discussion: Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

My husband just had esophageal cancer identified after a CT scan due to a car accident....

https://connect.mayoclinic.org/comment/1455605/

Discussion: Siewert type 2 Gastroesophageal adenocarcinoma

Support Group: Esophageal Cancer

Posted: Dec 7, 2025

@nannybb I really hope so to I'm so fed up did I ask you was your...

https://connect.mayoclinic.org/comment/1449010/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2025

@gig666 How did your PET scan turn out? Was it a DOTATATE scan specifically for NETs?...

https://connect.mayoclinic.org/comment/1033637/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2024

dpepsi247 | @dpepsi247 | 1 minute ago I am still relatively new to this whole journey....

https://connect.mayoclinic.org/comment/816818/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2023

I'd like to add my welcome to Connect @margaret2. I'm sorry that your cancer has recurred....

https://connect.mayoclinic.org/comment/232860/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 8, 2019

@gig666, great question. @jlsgt is right that the term carcinoid is out of favor. Here's some...

https://connect.mayoclinic.org/comment/1235902/

Discussion: Carcinoid NET changed to carcinoma: What's the difference?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2025

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