Neuroendocrine Tumors (NETs) Support Group

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My incontinence was enough to classify me as unsuitable for PRRT treatment. Radiation residue was the...

https://connect.mayoclinic.org/comment/815563/

Discussion: PRRT for those with Incontinence Issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

Hello. Anyone out there diagnosed with grade one tumor of small intestine? I had section of...

https://connect.mayoclinic.org/comment/813197/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

Hello, My darling husband, age 72, was diagnosed with a well-defined NET on his ileum this...

https://connect.mayoclinic.org/comment/812435/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Hi @allan2022, welcome. I moved your message to the Neuroendocrine Tumors (NETs) Support Group here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/...

https://connect.mayoclinic.org/comment/810465/

Discussion: Searching for info re NETs and heart issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

@tufan sorry for late reponse... thank you so much for your input. She finished her first...

https://connect.mayoclinic.org/comment/807461/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Carcinoid Specialists in The Villages I live in The Villages. I am looking for a Carcinoid...

https://connect.mayoclinic.org/comment/799583/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Thank you so much! This is a beautifully curated discussion group. This was discovered 5 months...

https://connect.mayoclinic.org/comment/799429/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2023

Hello @queensmom, I'm glad that you posted an update. It is good that the doctor at...

https://connect.mayoclinic.org/comment/787727/

Discussion: A report from a follow up appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results...

https://connect.mayoclinic.org/comment/780522/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

@georgiamartin - It must be difficult to live with that pain for so long and no...

https://connect.mayoclinic.org/comment/780279/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

Hello everyone. New to everything. Stage 4 but what is NET? Diagnosis is Neuroendocrine pancreatic tumor...

https://connect.mayoclinic.org/comment/776776/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Hi. Good to hear from you. I will try to help. What I have done has...

https://connect.mayoclinic.org/comment/776368/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Hello everyone. I have bilateral Pheochromocytoma's on both my adrenal glands. I live in Oregon. This...

https://connect.mayoclinic.org/comment/764174/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2022

Hi, its so good to meet someone going through the same thing. were you a patient...

https://connect.mayoclinic.org/comment/743510/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2022

Hi, yes i have lost confidence in my former medical team for a dozen of reasons....

https://connect.mayoclinic.org/comment/740221/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2022

Hi and thanks for your response. I have 3 people including the doctor say how there...

https://connect.mayoclinic.org/comment/739682/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

My PCP ordered a 5HIAA based on his opinion that I have carcinoid syndrone. It came...

https://connect.mayoclinic.org/comment/721534/

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2022

Welcome @laurell410. I look forward to learning more about you. What type of NETs do you...

https://connect.mayoclinic.org/comment/692346/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

@remi @jhilbish @cvb @lenorahaston @captain1950 @khauert @tomewilson @alphanumeric @gulzar @megansims @netpatient @kate12345 @amd12 @tatteesmom3 @elm60 I'm...

https://connect.mayoclinic.org/comment/681229/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Hello to all of our NETs members, On Thursday, January 27, at noon (EST) there will...

https://connect.mayoclinic.org/comment/674672/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2022

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