291 total results
Comments (261)
Thank you for all the information. I have nonfunctioning lung to liver Net just found out...
https://connect.mayoclinic.org/comment/671705/
Hello @amd12 I appreciate the added information. Like you, I was confused about my carcinoid tumors...
https://connect.mayoclinic.org/comment/657547/
@jessie1990 Well, because I have started with a new doctor, he does not want to see...
https://connect.mayoclinic.org/comment/1464439/
Hello @kmcbride77, and welcome to the NETs support group on Mayo Connect. It looks like you...
https://connect.mayoclinic.org/comment/1450859/
@jhhaas I am not sure if I am posting in the correct place. When was your...
https://connect.mayoclinic.org/comment/1433160/
@nannybb I always had asthma when I was sick or exposed to many animals. Then in...
https://connect.mayoclinic.org/comment/1432474/
@californiazebra (Hit send by accident) the large 2.6 cm tumor was more likely to spread. I...
https://connect.mayoclinic.org/comment/1427894/
@jessie1990 I want to note that after reading so many stories of both GI NETs and...
https://connect.mayoclinic.org/comment/1427890/
@mhcohan NETs specialists are few and far between. I'm not sure what part of the country...
https://connect.mayoclinic.org/comment/1415817/
I was diagnosed with stage 3 atypical carcinoid in dec of 2023. Ki-67 number was 5....
https://connect.mayoclinic.org/comment/1266745/
@gprior Thank you for the response. You’ve been through a lot. I’m sorry to hear of...
https://connect.mayoclinic.org/comment/1224889/
Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....
https://connect.mayoclinic.org/comment/1220927/
Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...
https://connect.mayoclinic.org/comment/1208685/
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
Thank you and we feel the same way. Why not monitor at this point. She feels...
https://connect.mayoclinic.org/comment/1111437/
Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...
https://connect.mayoclinic.org/comment/1108887/
@netnan I also have lung NETs (atypical carcinoids) and DIPNECH with 50+ tumors scattered across both...
https://connect.mayoclinic.org/comment/1107096/
Hello @netnan, had left lung NET atypical carcinoid tumor. It was a little bigger - between...
https://connect.mayoclinic.org/comment/1106611/
I joined the NET support group because my father had an intestinal carcinoid tumor; my half...
https://connect.mayoclinic.org/comment/275684/
Greetings. I am a newbee and just joined. I have a lung carcinoid. Actually there are...
https://connect.mayoclinic.org/comment/134267/
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